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March 2025

Topics include:
• We will Announce the 2025 US HAEA National Summit Travel Grant Winners Next Week! Keep An Eye on your Email
• HAEA Grassroots Advocacy Leaders Amplify Our Collective Voice During Rare Disease Week
• The HAEA Can Help You Afford College Education: Apply for an HAEA College Scholarship
• Your Voice Makes a Difference! Watch the HAEA Welcome to Congress Webinar
• Meet Members of Your HAEA Community: Join the 2025 Virtual Meet & Greet!
• Spring into Health and Wellness with the HAEA CARE Groups
• Listen to Luke’s HAE Journey: A Letter to My 10-Year-Old Self on the #BeyondHAE Podcast
• Be Prepared: Take the HAEA Academy Travel & Emergency Preparedness Module
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
February 2025

Topics include:
• Don’t Miss Your Chance to Attend the 2025 US HAEA National Summit! Apply for a Travel Grant – Less Than Two Weeks Left!
• Let the HAEA Help You Afford College Education: Apply for an HAEA College Scholarship
• Influence Legislation Affecting the HAE Community: Register for the HAEA Welcome to Congress Webinar
• Heart Health Awareness and the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
January 2025

Topics include:
• Join Us for the 2025 US HAEA National Summit: Registration is Open!
• Apply for an HAEA College Scholarship!
• #Families4HAE: Thank You for Empowering the Next Generation of Leaders
• Start the New Year with New Connections: Join the Brady Club Pen Pal Program!
• #BeyondHAE Podcast: Meet the HAEA’s Youth Leadership Council
• Focus on You with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
December 2024

Topics include:
• Save the Date: 2025 US HAEA National Summit
• Reflect On A Milestone Year for the HAEA Community: 2024 Year in Review
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Focus On Your HAE Health: Tips for the End of the Year
• Level Up Your Skills: Apply for the HAEA Social Media Internship Program!
• Read the HAEA Community Blog: The Elephant in the Room: HAE & Mental Health
• Want to Connect with others? Join One of our Virtual HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
November 2024

Topics include:
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Empower Your Future: Apply for the 2025 HAEA Internship Program
• Prepare for a Smooth Holiday Season: Focus on Stress-Free Planning and Self-Care Tips Through the HAEA CARE Groups
• Increase Mindfulness of Your Self-Care: Connect with Others at the HAEA’s Fun-Packed Virtual Self-Care Bingo Night
• #BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
• HAE Speaks Podcast Episode 50: Innovations in HAE with KalVista
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
October 2024

Topics include:
• Over 350 HAEA Friends Stepped It Up for HAE and Raised Awareness During the 2024 HAE IN-MOTION® Virtual Event!
• Celebrating Youth Advocacy Month by Recognizing Our Next Generation of Leaders
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• On Medicare or Soon to Be Eligible? Explore the HAEA Academy Medicare Basics Course
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the #BeyondHAE Podcast: Ally & Luke's Journey in Legislative Advocacy
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
September 2024

Topics include:
• In Memoriam - Marcus Maurer, MD (1966-2024)
• Breakthrough HAEA-Initiated Research on Quality of Life Published in a Prestigious Medical Journal
• Step Up for HAE: Join the 2024 HAE IN-MOTION® Virtual Challenge Today!
• Building Connections: Highlights from the NYC HAEA Community Connections Dinner
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the HAE Speaks Podcast: Ahead of the Swell - Uncovering the Target That Could Stop Attacks
• Listen to the #BeyondHAE Podcast: A Day in the Life of Zach
• Read the HAEA Community Blog: Going Back to School With HAE
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
August 2024

Topics include:
• Honoring HAEA Scholars: Highlights from the HAEA Scholarship Gala
• Advancing HAE Advocacy for a Better Future
• Nominate a Young HAE Advocate: Recognize Outstanding Youth Leaders During HAE Youth Advocacy Month
• Applications for HAEA College Scholarships Are Now Open!
• HAE Speaks Podcast: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
• Learn More about Relaxation Tips with the HAEA CARE Groups
• HAEA Treatment Education Series
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
July 2024

Topics include:
• Empowering the HAE Community: Introducing the HAEA Academy!
• Interested in Learning About Medicare?
• Are you planning to attend a college or university in the Spring of 2025? Applications for the Spring 2025 HAEA Scholarships will open on August 1st!
• Celebrating Excellence: Dr. Marc Riedl Appointed as HAE Community Endowed Chair in Angioedema Clinical Excellence
• Sanyu Shares “A Day In Her Life as a Young Adult on Preventative Medication” - Listen to the #BeyondHAE Podcast
• Make Time for Mindfulness with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER
June 2024

Topics include:
• Participate in a Ground-Breaking Research Study focusing on Caregivers for people with HAE
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: US HAEA National Summit Ask the Experts Q&A
• Read the HAEA Community Blog: “The Power of Prevention to Address the Burden of HAE”
• Educating Medical Professionals on HAE Through the CME Program
• Explore Nature as a Form of Self-Care During the HAEA CARES Groups
• Read our Clinical Trial Updates and Choose to be Part of Winning Approval for the Next Generation of HAE Therapies
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
May 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Kailani Shares "A Day In Her Life as a Caregiver" - Listen to the #BeyondHAE Podcast
• Read the HAEA Community Blog: “If You Asked Me About My Attacks”
• Educating Medical Professionals on HAE Through the CME Program
• Use hae day :-) as an Opportunity to Share Your Story in the HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
April 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Exciting Research Advances in HAE with Normal C1-Inhibitor
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: My Cross-Country Trip Across the United States to Raise HAE Awareness
• Learn How to Build a Successful Self-Care Routine Through the HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
March 2024

Topics include:
• Protect Access to Life-saving HAE Treatments by Joining the HAEA Grassroots Advocacy Network
• Take Advantage of the 2024 Scholarship Opportunities for People with HAE
• The HAEA’s Remarkable Impact on Improving Our Community’s Health and Well-Being is Highlighted in the 2023 Annual Report
• Music Transforms Lives: CMF Scholarship
• Help Your Child, Teen, or Young Adult Cope with HAE by Ordering an HAEA Cares Kit
• Get Expert Advice to Prevent Caregiver Burnout: Read the HAEA Community Blog
• 14-Year-Old Caroline Shares A Day In Her Life: Listen to the #BeyondHAE Podcast
• Make Connections and Get the Support You Need by Participating in the HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
February 2024

Topics include:
• Working to Protect Financial Assistance for HAE Medications
• Act Now, So Elected Officials Understand the Need for Continued Access of HAE Medications
• HAEi Americas Regional Conference Takes Place in Panama March 15-17
• Take Advantage of the 2024 Scholarship Opportunities for People with HAE
• Connect with Others in the HAE Community at an Upcoming Meet and Greet
• HAE Speaks Podcast: Create An Impact with a DIY Event
• HAEA Care Groups: Rare Disease Day Celebration
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
January 2024

Topics include:
• 25 Years of the HAEA Protecting the HAE Community
• From the HAEA Board of Directors
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Join the Next Generation of HAEA Leaders with the Youth Leadership Programs
• HAEA Community Blog: 2023 Rare Youth Fest Recap
• #BeyondHAE Podcast: A Day in the Life of A Young Woman with HAE
• HAEA Care Groups: Tips for A Happy and Healthy New Year
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
December 2023

Topics include:
• Message from Tony Castaldo
• Choose the Best Health Insurance Option for You in 2024
• Invest in the Future of HAEA Youth
• HAEA Community Blog: Reflections from the 2023 US HAEA National Summit
• HAE Speaks Podcast: Kate is Living Beyond HAE
• HAEA Care Groups: Celebrations and Reflections
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
November 2023

Topics include:
• Court Ruling Favors Access to Therapies for Rare Disease
• Re-Enroll in Charitable Assistance for 2024
• Choose the Best Health Insurance Option for You in 2024
• Brighten the Future for HAEA Youth Through the Families4HAE Campaign
• You Are Not Alone: Meet HAEA Friends in your Community
• Your HAEA Hero: Nominate that Special Caregiver or Healthcare Professional
• HAEA Community Blog: Sheena’s First-Time Experience at the 2023 US HAEA National Summit
• HAE Speaks Podcast: Finding a Diagnosis After 25 Years
• #BeyondHAE Podcast: A Parent’s Heartfelt Experience as an HAE Caregiver
• Struggling to Cope with HAE? Participate In the HAEA Care Groups
• Clinical Trial Updates
• Check Out Exciting Upcoming HAEA Events
• Social Media Snapshots

NEWSLETTER
October 2023

Topics include:
• Re-Enroll in Charitable Assistance for 2024
• Medicare Research Survey
• HAE IN-MOTION®
• HAEA Hero Recognition Program
• Youth Advocacy Month
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Podcast
• HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
September 2023

Topics include:
• 2023 HAEA Virtual Capitol Hill Day
• HAE IN-MOTION®
• HAEA Community Blog
• Baby Boomer Meet and Greet
• Pam King HAEA Scholarship
• Host A DIY Event
• HAEA Cares Kits
• HAE Speaks Podcast
• #BeyondHAE Podcast
• HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
August 2023

Topics include:
• Share your Summit Feedback
• Lois Perry joins the US HAEA Board of Directors
• Medicare Webinar
• 2023 HAEA Virtual Capitol Hill Day
• HAE IN-MOTION® - Step It Up for HAE Event
• 2024 HAEi Regional Conference
• Track Your HAE Using the HAE TrackR App
• Baby Boomer Meet and Greet
• Pam King HAEA Scholarship Program
• HAE Speaks Podcast
• HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
July 2023

Topics include:
• Advocacy Corner
• HAEA Study on Insurance Denials
• HAE Speaks Podcast
• BeyondHAE Podcast
• Support Groups
• HAEA Community Blog: HAE At A Young Age
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
June 2023

Topics include:
• 2023 hae day :-)
• Major Medical Journal Publishes HAEA-led Study on Negative Impact of Insurance Denials
• Support Groups
• HAEA Community Blog
• HAE Speaks Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
May 2023

Topics include:
• hae day :-) is on May 16th!
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• New Member Meet & Greet
• Support Groups
• HAEA Community Blog: hae day :-)
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
April 2023

Topics include:
• 2023 hae day :-) Celebration
• Parents and Caregivers Virtual Meet and Greet
• HAEA Youth Advocacy Network Welcome to Congress Training
• Share Your Impactful Memories with Lois Perry!
• Support Groups
• HAEA Community Blog: Adina
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
March 2023

Topics include:
• Advocacy Corner
• 2023 US HAEA National Summit
• Support Groups
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
February 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• 2023 Legislative Update and Welcome to Congress
• Pam King HAEA Scholarship
• Support Groups
• Open Enrollment Season
• HAEA Community Blog: Brandie
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
January 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• Open Enrollment Season
• Families4HAE
• New Year, New Coping Skills
• HAEA Community Blog: Ava
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER
December 2022

Topics include:
• 2023 US HAEA National Summit
• Message from Our President
• Shared Decision Making Tool
• Open Enrollment Season
• Families4HAE
• Original US HAEA Initiated Research
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates

NEWSLETTER
November 2022

Topics include:
• Support #Families4HAE
• Don’t Miss Health Insurance Open Enrollment
• UCA Coverage and Access Forum
• Caregiver Appreciation Month
• HAEA Community Blog
• HAE Speaks Podcast: A Focus On Advocacy
• #BeyondHAE Youth Podcast: Ally’s Management Journey
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER
October 2022

Topics include:
• Celebrate Youth Advocacy Month
• Health Insurance Open Enrollment Announcement
• Nominate Your Caregiver!
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER
September 2022

Topics include:
• Health Insurance Open Enrollment
• Back To School
• Pam King HAEA Scholarship
• Community Blog
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER
August 2022

Topics include:
• HAE IN-MOTION®
• Pam King HAEA Scholarship
• Advocacy Action Alert
• Back To School
• Women With HAE
• Health Team Update
• HAEA Healthcare Hero Recognition
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER
July 2022

Topics include:
• HAE IN-MOTION®
• Advocacy Action Alert
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER
June 2022

Topics include:
• HAE IN-MOTION®
• Quality of Life Survey
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER
May 2022

Topics include:
• hae day :-)
• Women With HAE • Virtual Capitol Hill Campaign
• Voter Voice • HAEA Round Table
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER
April 2022

Topics include:
• hae day :-)
• HAEA Virtual Capitol Hill Campaign
• HAEA Round Table
• Health Team Update
• Music Therapy Program Scholarships
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER
March 2022

Topics include:
• hae day :-)
• Protect the Rights of People with HAE!
• Pam King HAEA Scholarship
• HAEA Round Table
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER
February 2022

Topics include:
• Heart Health Month
• Rare Disease Day
• 2022 Legislative Update
• Pam King HAEA Scholarship
• HAEA Round Table
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER
January 2022

Topics include:
• Happy New Year 2022
• Newsletter ReDesigned
• HAEA Round Table
• Health Team Checklist
• Physician Spotlight
• Community Blog
• Podcasts
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER