May 2025

Topics include:
• Protecting Your Privacy in a Changing HAE Environment
• Celebrate hae day :-) 2025 – Make a Lasting Impact!
• Uniting for Impact: HAEA Youth Leaders and Social Media Interns Gather for 2025 Leadership Training in Baltimore
• Advocacy Action Alert: Together, We're Making Strides for the HAE Community
• HAEA Youth Leader Ally B. Joins HAE International LEAP Program in Copenhagen
• Watch this month’s On-Demand HAEA Treatment Education Series Webinars!
• Listen to the #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
• Listen to the HAE Speaks Podcast: A Dialogue with Global Experts about Bradykinin-Mediated Angioedema
• Focus on Your Overall Well-being During Mental Health Awareness Month with the HAEA CARES Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

April 2025

Topics include:
• Landmark HAEA-Initiated Global Consensus Paper on HAE with Normal C1-INH Reflects Ongoing Intensive Efforts to Help These Members of Our Community
• Celebrate hae day :-) 2025 – Make a Lasting Impact!
• Offer Your Healthcare Professional an Opportunity to Interact with the Country’s Leading HAE Experts
• Is Your Health Insurance Denying Your HAE Medications? The HAEA Health Team Can Help!
• A Youth Leader’s Perspective While Raising HAE Awareness on Capitol Hill: Read the HAEA Community Blog
• Watch the New On-Demand HAEA Treatment Education Series Webinar! Navigating Complexities of HAE Caregiving with Dr. Marc Riedl
• Listen to the HAE Speaks Podcast: Legislative Series - Insights from Two Grassroots Leaders
• Manage Stress Effectively with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

March 2025

Topics include:
• We will Announce the 2025 US HAEA National Summit Travel Grant Winners Next Week! Keep An Eye on your Email
• HAEA Grassroots Advocacy Leaders Amplify Our Collective Voice During Rare Disease Week
• The HAEA Can Help You Afford College Education: Apply for an HAEA College Scholarship
• Your Voice Makes a Difference! Watch the HAEA Welcome to Congress Webinar
• Meet Members of Your HAEA Community: Join the 2025 Virtual Meet & Greet!
• Spring into Health and Wellness with the HAEA CARE Groups
• Listen to Luke’s HAE Journey: A Letter to My 10-Year-Old Self on the #BeyondHAE Podcast
• Be Prepared: Take the HAEA Academy Travel & Emergency Preparedness Module
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

February 2025

Topics include:
• Don’t Miss Your Chance to Attend the 2025 US HAEA National Summit! Apply for a Travel Grant – Less Than Two Weeks Left!
• Let the HAEA Help You Afford College Education: Apply for an HAEA College Scholarship
• Influence Legislation Affecting the HAE Community: Register for the HAEA Welcome to Congress Webinar
• Heart Health Awareness and the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

January 2025

Topics include:
• Join Us for the 2025 US HAEA National Summit: Registration is Open!
• Apply for an HAEA College Scholarship!
• #Families4HAE: Thank You for Empowering the Next Generation of Leaders
• Start the New Year with New Connections: Join the Brady Club Pen Pal Program!
• #BeyondHAE Podcast: Meet the HAEA’s Youth Leadership Council
• Focus on You with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

December 2024

Topics include:
• Save the Date: 2025 US HAEA National Summit
• Reflect On A Milestone Year for the HAEA Community: 2024 Year in Review
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Focus On Your HAE Health: Tips for the End of the Year
• Level Up Your Skills: Apply for the HAEA Social Media Internship Program!
• Read the HAEA Community Blog: The Elephant in the Room: HAE & Mental Health
• Want to Connect with others? Join One of our Virtual HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

November 2024

Topics include:
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Empower Your Future: Apply for the 2025 HAEA Internship Program
• Prepare for a Smooth Holiday Season: Focus on Stress-Free Planning and Self-Care Tips Through the HAEA CARE Groups
• Increase Mindfulness of Your Self-Care: Connect with Others at the HAEA’s Fun-Packed Virtual Self-Care Bingo Night
• #BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
• HAE Speaks Podcast Episode 50: Innovations in HAE with KalVista
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

October 2024

Topics include:
• Over 350 HAEA Friends Stepped It Up for HAE and Raised Awareness During the 2024 HAE IN-MOTION® Virtual Event!
• Celebrating Youth Advocacy Month by Recognizing Our Next Generation of Leaders
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• On Medicare or Soon to Be Eligible? Explore the HAEA Academy Medicare Basics Course
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the #BeyondHAE Podcast: Ally & Luke's Journey in Legislative Advocacy
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

September 2024

Topics include:
• In Memoriam - Marcus Maurer, MD (1966-2024)
• Breakthrough HAEA-Initiated Research on Quality of Life Published in a Prestigious Medical Journal
• Step Up for HAE: Join the 2024 HAE IN-MOTION® Virtual Challenge Today!
• Building Connections: Highlights from the NYC HAEA Community Connections Dinner
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the HAE Speaks Podcast: Ahead of the Swell - Uncovering the Target That Could Stop Attacks
• Listen to the #BeyondHAE Podcast: A Day in the Life of Zach
• Read the HAEA Community Blog: Going Back to School With HAE
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

August 2024

Topics include:
• Honoring HAEA Scholars: Highlights from the HAEA Scholarship Gala
• Advancing HAE Advocacy for a Better Future
• Nominate a Young HAE Advocate: Recognize Outstanding Youth Leaders During HAE Youth Advocacy Month
• Applications for HAEA College Scholarships Are Now Open!
• HAE Speaks Podcast: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
• Learn More about Relaxation Tips with the HAEA CARE Groups
• HAEA Treatment Education Series
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

July 2024

Topics include:
• Empowering the HAE Community: Introducing the HAEA Academy!
• Interested in Learning About Medicare?
• Are you planning to attend a college or university in the Spring of 2025? Applications for the Spring 2025 HAEA Scholarships will open on August 1st!
• Celebrating Excellence: Dr. Marc Riedl Appointed as HAE Community Endowed Chair in Angioedema Clinical Excellence
• Sanyu Shares “A Day In Her Life as a Young Adult on Preventative Medication” - Listen to the #BeyondHAE Podcast
• Make Time for Mindfulness with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

June 2024

Topics include:
• Participate in a Ground-Breaking Research Study focusing on Caregivers for people with HAE
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: US HAEA National Summit Ask the Experts Q&A
• Read the HAEA Community Blog: “The Power of Prevention to Address the Burden of HAE”
• Educating Medical Professionals on HAE Through the CME Program
• Explore Nature as a Form of Self-Care During the HAEA CARES Groups
• Read our Clinical Trial Updates and Choose to be Part of Winning Approval for the Next Generation of HAE Therapies
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

May 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Kailani Shares "A Day In Her Life as a Caregiver" - Listen to the #BeyondHAE Podcast
• Read the HAEA Community Blog: “If You Asked Me About My Attacks”
• Educating Medical Professionals on HAE Through the CME Program
• Use hae day :-) as an Opportunity to Share Your Story in the HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

April 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Exciting Research Advances in HAE with Normal C1-Inhibitor
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: My Cross-Country Trip Across the United States to Raise HAE Awareness
• Learn How to Build a Successful Self-Care Routine Through the HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER