May 2023

Topics include:
• hae day :-) is on May 16th!
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• New Member Meet & Greet
• Support Groups
• HAEA Community Blog: hae day :-)
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

April 2023

Topics include:
• 2023 hae day :-) Celebration
• Parents and Caregivers Virtual Meet and Greet
• HAEA Youth Advocacy Network Welcome to Congress Training
• Share Your Impactful Memories with Lois Perry!
• Support Groups
• HAEA Community Blog: Adina
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

March 2023

Topics include:
• Advocacy Corner
• 2023 US HAEA National Summit
• Support Groups
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

February 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• 2023 Legislative Update and Welcome to Congress
• Pam King HAEA Scholarship
• Support Groups
• Open Enrollment Season
• HAEA Community Blog: Brandie
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

January 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• Open Enrollment Season
• Families4HAE
• New Year, New Coping Skills
• HAEA Community Blog: Ava
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

December 2022

Topics include:
• 2023 US HAEA National Summit
• Message from Our President
• Shared Decision Making Tool
• Open Enrollment Season
• Families4HAE
• Original US HAEA Initiated Research
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates

NEWSLETTER

November 2022

Topics include:
• Support #Families4HAE
• Don’t Miss Health Insurance Open Enrollment
• UCA Coverage and Access Forum
• Caregiver Appreciation Month
• HAEA Community Blog
• HAE Speaks Podcast: A Focus On Advocacy
• #BeyondHAE Youth Podcast: Ally’s Management Journey
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

October 2022

Topics include:
• Celebrate Youth Advocacy Month
• Health Insurance Open Enrollment Announcement
• Nominate Your Caregiver!
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

September 2022

Topics include:
• Health Insurance Open Enrollment
• Back To School
• Pam King HAEA Scholarship
• Community Blog
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

August 2022

Topics include:
• HAE IN-MOTION^®
• Pam King HAEA Scholarship
• Advocacy Action Alert
• Back To School
• Women With HAE
• Health Team Update
• HAEA Healthcare Hero Recognition
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

July 2022

Topics include:
• HAE IN-MOTION^®
• Advocacy Action Alert
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

June 2022

Topics include:
• HAE IN-MOTION^®
• Quality of Life Survey
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

May 2022

Topics include:
• hae day :-)
• Women With HAE • Virtual Capitol Hill Campaign
• Voter Voice • HAEA Round Table
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

April 2022

Topics include:
• hae day :-)
• HAEA Virtual Capitol Hill Campaign
• HAEA Round Table
• Health Team Update
• Music Therapy Program Scholarships
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

March 2022

Topics include:
• hae day :-)
• Protect the Rights of People with HAE!
• Pam King HAEA Scholarship
• HAEA Round Table
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER

February 2022

Topics include:
• Heart Health Month
• Rare Disease Day
• 2022 Legislative Update
• Pam King HAEA Scholarship
• HAEA Round Table
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER

January 2022

Topics include:
• Happy New Year 2022
• Newsletter ReDesigned
• HAEA Round Table
• Health Team Checklist
• Physician Spotlight
• Community Blog
• Podcasts
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER