August 2026

Topics include:
• HAEA Capitol Hill Day: 250 Grassroots Advocates Visit 167 Congressional Offices and Get Results
• HAEA Scholarships Are Now Open for Anyone with HAE Planning to Attend College in the Spring of 2027!
• Back-to-School: Be Prepared for a Successful School Year with HAE
• Celebrate the Next Generation of HAEA Leaders During HAEA Youth Advocacy Month
• Meet HAEA Friends In Oregon: Attend the HAEA Community Connections Event at the Oregon Zoo
• Finding Community at Camp Brady: Read Family Stories of Connection and Hope
• Redefining Life with HAE: Read Landen’s Community Blog
• HAE Speaks Podcast: Stronger Together – One Family's HAE Journey
• Join the Hive: Participate in the ADVANCE HAE Scientific Registry!
• Roundtable with the CEO: Tony Has a Conversation with a CSL Executive Director
• Clinical Trial Updates
• Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

July 2026

Topics include:
• Create a True Partnership with your Physician To Better Manage Your HAE
• Connection, Conversation, and Community in Hershey, Pennsylvania!
• Nick and Dylan Inspire Other Young People Living with HAE and Never Let HAE Define Their Potential: Listen to the #BeyondHAE Podcast
• A Mother’s Struggle with HAE Empowered Her Son’s Positive Outlook and Expectations for a Better Future: Read the HAEA Community Blog
• HAEA Webinars Provide Information that Our Community Needs to Know
• Celebrating Independence - Living Fully with HAE
• Clinical Trial Updates
• Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

June 2026

Topics include:
• Have a Child with HAE? Share this Kid-Friendly Educational Video
• Join the Hive: Support HAE Research
• Building Connections Across the HAEA Community
• Can’t Attend an In-Person Event or One Isn’t Being Held in Your Area? Join the HAEA Virtual Meet and Greet
• Read this Month’s HAEA Community Blog: A Father’s Day Reflection – Testing My Son for HAE
• Watch the Latest HAEA Treatment Education Series Webinar: Mapping HAE Treatment – Current Routes and the Road Ahead
• Listen to the HAE Speaks Podcast: Summer Safety Tips with the HAEA Health Team
• Clinical Trial Updates
• Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

May 2026

Topics include:
• hae day :-) 2026 Theme: Awareness Through Education
• Camp Brady: An HAEA Weekend to Remember
• Empowering the Next Generation of Leaders – HAEA Youth Programs
• A Special Episode of the HAE Speaks Podcast: Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer
• Read this month’s HAEA Community Blog Articles
• HAEA Webinars Provide Information that Our Community Needs to Know
• Gain New Perspectives on Living with HAE: Listen to HAEA Podcasts
• HAEA CARE Groups: Raising Awareness Together To Strengthen Each Other
• Clinical Trial Updates
• Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

April 2026

Topics include:
• Meet HAE Friends from Throughout the Americas: Apply Today to Attend the 2026 HAEi Regional Conference in Canada!
• hae day :-) 2026 Theme: Awareness Through Education
• Watch the Mental Health and HAE Treatment Education Series Webinar
• Read the HAE Community Blog: Pursuing an Active Career With HAE
• HAEA CARE Groups: Managing Stress - Managing HAE
• Clinical Trial Updates
• Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

March 2026

Topics include:
• Apply Today to Attend the 2026 HAEi Regional Conference Americas!
• HAEA Grassroots Advocacy Network Leaders Make Their Voices Heard in Washington DC
• HAEA Scholarships Available for Those Planning to Attend a College or University in the Fall of 2026
• HAEA Scholarships Support Adult Learners Seeking Higher Education: Listen to Tina’s Experience on the HAE Speaks Podcast
• The Privilege of Being A Caregiver: Read the HAEA Community Blog
• HAEA Webinars Provide Information that Our Community Needs to Know
• Hear How Young People Are Advocating for Rare Disease on Capitol Hill: Tune in to the #BeyondHAE Podcast
• Listen to a Candid Conversation Between an HAE Treating Physician and Patient on the HAE Speaks Podcast
• HAEA CARES Groups: Practicing March Mindfulness
• Clinical Trial Updates
• Start the New Year Connected: Update Your HAEA Membership!
• Social Media Snapshots

NEWSLETTER

February 2026

Topics include:
• Help Us Advance Current Understanding of HAE By Participating in a New HAEA Study - Survey Closes on February 28th!
• Are you Planning to Attend a College or University in the Fall of 2026?
• Advocacy Action Alert: Key Health Legislation Passed in the House
• HAEA Community Blog: The Importance of Shared Decision-Making in HAE Care
• Help Your Child, Teen, or Young Adult Cope with HAE by Ordering an HAEA Cares Kit
• Start the New Year Connected: Update Your HAEA Membership!
• HAEA CARES Groups Update: Heart Health & Whole-Body Wellness with HAE
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

January 2026

Topics include:
• Help Us Advance Current Understanding of HAE By Participating in a New HAEA Study
• HAEA Shared Decision Making Tool: Create a True Partnership with Your Physician To Better Manage Your HAE
• HAEA Community Blog: Staying Resilient After My Diagnosis
• Listen to the HAEA Podcasts and Learn About Resources Available to You
• Start the New Year Connected: Update Your HAEA Membership!
• HAEA CARES: Staying Well During a Busy Season
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

December 2025

Topics include:
• #Families4HAE: Empowering the Next Generation of Advocates
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us!
• New Resource for Young Adults: Insurance Frequently Asked Questions
• HAE Speaks Podcasts
• Create a True Partnership with Your Physician To Better Manage Your HAE
• HAEA CARES: Staying Well During a Busy Season
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

November 2025

Topics include:
• Donate to #Families4HAE: Building A Brighter Future for HAEA Youth Starts with Us
• Open Enrollment Season Is Upon Us: Be Prepared to Understand Your Options
• Encourage Your Child to Develop Critical Skills and Connect with Others by Applying to Two Exciting HAEA Youth Leadership Programs
• Listen to the HAEA Podcasts and Learn About Resources Available to You
• Read a Personal Story About Finding Relief from HAE in this Month’s HAEA Community Blog
• Create a True Partnership with Your Physician To Better Manage Your HAE
• Learn About HAE Medicines by Viewing the HAEA Treatment Education Series Webinars
• Stay Healthy and Enjoy the Holiday Season with the HAEA CARES Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

October 2025

Topics include:
• HAE IN-MOTION® Has Officially Begun: Let’s Get Moving Together
• Open Enrollment Season Is Upon Us: Be Prepared to Understand Your Options
• Apply Today for the HAEA Youth Leadership Council & 2026 Social Media Internship!
• Shining a Spotlight on the Next Generation of HAEA Leaders
• New Resource for Young Adults: Insurance Frequently Asked Questions
• Camp Brady at The Painted Turtle: Act Now Before Travel Grant Applications Close October 15th
• HAE Speaks Podcast: Understanding Medicare Enrollment
• Create a True Partnership with Your Physician To Better Manage your HAE
• Learn About HAE Medicines by Viewing the HAEA Treatment Education Series Webinars
• HAEA CARES: Feeling Overwhelmed by Open Enrollment? You’re Not Alone In This Journey
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

September 2025

Topics include:
• Create a True Partnership with your Physician To Better Manage your HAE: Access the US HAEA Shared Decision Making Tool
• Attending a College or University in the Spring of 2026? Apply for An HAEA Scholarship
• Track Your Steps While Raising HAE Awareness! Pre-Register today for the HAE IN-MOTION® - Step Up for HAE Event this October
• Special Summer Camp for HAEA Kids Ages 6-13: Tune In to our Informative Q&A Webinar
• Learn About the HAE TrackR App by Accessing the HAEA Academy
• Listen to the #BeyondHAE Podcast: Advocating for Yourself As You Transition into College
• Are You Asking the Right Questions When Reviewing Your Insurance Plan? Join HAEA Nurse Case Managers on the Next HAEA CARE Group Meeting
• Clinical Trial Updates
• Join Us at an Upcoming HAEA Event
• Social Media Snapshots

NEWSLETTER

August 2025

Topics include:
• 1400 HAEA Friends Share a Memorable 2025 US HAEA National Summit in Baltimore, Maryland
• Are you Planning to Attend a College or University in the Spring of 2026?
• US HAEA Publishes First-Ever Study Showing the Number of People Diagnosed with HAE in the United States
• Celebrate Youth Leaders During HAE Youth Advocacy Month
• Learn with the HAEA Academy: Back to School
• Traveling With HAE? 6 Important Tips
• Back to School HAEA CARES
• Clinical Trial Updates
• Join Us at an Upcoming HAEA Event
• Social Media Snapshots

NEWSLETTER

July 2025

Topics include:
• The Countdown to the 2025 US HAEA National Summit in Baltimore is On!
• Are you Planning to Attend a College or University in the Spring of 2026?
• Expand Your Knowledge with HAEA Academy Courses
• Tips for Managing HAE While Traveling: Watch the New On-Demand Webinar
• Hear About a Family’s Journey with HAE: Listen to this Month’s #BeyondHAE Podcast
• Learn About a Clinical Trial for an Oral Preventative Treatment: Listen to this Month’s HAE Speaks Podcast
• Coping with Summertime Stress: Join an HAEA CARES Group
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

June 2025

Topics include:
• Embracing a Brighter Future at the 2025 US HAEA National Summit in Baltimore
• Ally Shares How the HAE International (HAEi) LEAP Program Trains, Motivates, and Empowers the Next Generation of HAE Advocates: Read the HAEA Community Blog
• Listen to this Month’s HAE Speaks Podcast Episodes
• Planning Summer Travel? Don’t Miss the Next HAEA CARES Meeting
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

May 2025

Topics include:
• Protecting Your Privacy in a Changing HAE Environment
• Celebrate hae day :-) 2025 – Make a Lasting Impact!
• Uniting for Impact: HAEA Youth Leaders and Social Media Interns Gather for 2025 Leadership Training in Baltimore
• Advocacy Action Alert: Together, We're Making Strides for the HAE Community
• HAEA Youth Leader Ally B. Joins HAE International LEAP Program in Copenhagen
• Watch this month’s On-Demand HAEA Treatment Education Series Webinars!
• Listen to the #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
• Listen to the HAE Speaks Podcast: A Dialogue with Global Experts about Bradykinin-Mediated Angioedema
• Focus on Your Overall Well-being During Mental Health Awareness Month with the HAEA CARES Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

April 2025

Topics include:
• Landmark HAEA-Initiated Global Consensus Paper on HAE with Normal C1-INH Reflects Ongoing Intensive Efforts to Help These Members of Our Community
• Celebrate hae day :-) 2025 – Make a Lasting Impact!
• Offer Your Healthcare Professional an Opportunity to Interact with the Country’s Leading HAE Experts
• Is Your Health Insurance Denying Your HAE Medications? The HAEA Health Team Can Help!
• A Youth Leader’s Perspective While Raising HAE Awareness on Capitol Hill: Read the HAEA Community Blog
• Watch the New On-Demand HAEA Treatment Education Series Webinar! Navigating Complexities of HAE Caregiving with Dr. Marc Riedl
• Listen to the HAE Speaks Podcast: Legislative Series - Insights from Two Grassroots Leaders
• Manage Stress Effectively with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

March 2025

Topics include:
• We will Announce the 2025 US HAEA National Summit Travel Grant Winners Next Week! Keep An Eye on your Email
• HAEA Grassroots Advocacy Leaders Amplify Our Collective Voice During Rare Disease Week
• The HAEA Can Help You Afford College Education: Apply for an HAEA College Scholarship
• Your Voice Makes a Difference! Watch the HAEA Welcome to Congress Webinar
• Meet Members of Your HAEA Community: Join the 2025 Virtual Meet & Greet!
• Spring into Health and Wellness with the HAEA CARE Groups
• Listen to Luke’s HAE Journey: A Letter to My 10-Year-Old Self on the #BeyondHAE Podcast
• Be Prepared: Take the HAEA Academy Travel & Emergency Preparedness Module
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

February 2025

Topics include:
• Don’t Miss Your Chance to Attend the 2025 US HAEA National Summit! Apply for a Travel Grant – Less Than Two Weeks Left!
• Let the HAEA Help You Afford College Education: Apply for an HAEA College Scholarship
• Influence Legislation Affecting the HAE Community: Register for the HAEA Welcome to Congress Webinar
• Heart Health Awareness and the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

January 2025

Topics include:
• Join Us for the 2025 US HAEA National Summit: Registration is Open!
• Apply for an HAEA College Scholarship!
• #Families4HAE: Thank You for Empowering the Next Generation of Leaders
• Start the New Year with New Connections: Join the Brady Club Pen Pal Program!
• #BeyondHAE Podcast: Meet the HAEA’s Youth Leadership Council
• Focus on You with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

December 2024

Topics include:
• Save the Date: 2025 US HAEA National Summit
• Reflect On A Milestone Year for the HAEA Community: 2024 Year in Review
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Focus On Your HAE Health: Tips for the End of the Year
• Level Up Your Skills: Apply for the HAEA Social Media Internship Program!
• Read the HAEA Community Blog: The Elephant in the Room: HAE & Mental Health
• Want to Connect with others? Join One of our Virtual HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

November 2024

Topics include:
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• Inspiring the Next Generation of HAEA Leaders: Donate to the #Families4HAE Fundraiser
• Empower Your Future: Apply for the 2025 HAEA Internship Program
• Prepare for a Smooth Holiday Season: Focus on Stress-Free Planning and Self-Care Tips Through the HAEA CARE Groups
• Increase Mindfulness of Your Self-Care: Connect with Others at the HAEA’s Fun-Packed Virtual Self-Care Bingo Night
• #BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
• HAE Speaks Podcast Episode 50: Innovations in HAE with KalVista
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

October 2024

Topics include:
• Over 350 HAEA Friends Stepped It Up for HAE and Raised Awareness During the 2024 HAE IN-MOTION® Virtual Event!
• Celebrating Youth Advocacy Month by Recognizing Our Next Generation of Leaders
• Be Prepared to Choose an Optimal Insurance Plan: Open Enrollment Season Is Upon Us
• On Medicare or Soon to Be Eligible? Explore the HAEA Academy Medicare Basics Course
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the #BeyondHAE Podcast: Ally & Luke's Journey in Legislative Advocacy
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

September 2024

Topics include:
• In Memoriam - Marcus Maurer, MD (1966-2024)
• Breakthrough HAEA-Initiated Research on Quality of Life Published in a Prestigious Medical Journal
• Step Up for HAE: Join the 2024 HAE IN-MOTION® Virtual Challenge Today!
• Building Connections: Highlights from the NYC HAEA Community Connections Dinner
• Take Care of Your Mental Health this Month with the HAEA CARES Groups
• Listen to the HAE Speaks Podcast: Ahead of the Swell - Uncovering the Target That Could Stop Attacks
• Listen to the #BeyondHAE Podcast: A Day in the Life of Zach
• Read the HAEA Community Blog: Going Back to School With HAE
• HAEA Events Calendar
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

August 2024

Topics include:
• Honoring HAEA Scholars: Highlights from the HAEA Scholarship Gala
• Advancing HAE Advocacy for a Better Future
• Nominate a Young HAE Advocate: Recognize Outstanding Youth Leaders During HAE Youth Advocacy Month
• Applications for HAEA College Scholarships Are Now Open!
• HAE Speaks Podcast: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
• Learn More about Relaxation Tips with the HAEA CARE Groups
• HAEA Treatment Education Series
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

July 2024

Topics include:
• Empowering the HAE Community: Introducing the HAEA Academy!
• Interested in Learning About Medicare?
• Are you planning to attend a college or university in the Spring of 2025? Applications for the Spring 2025 HAEA Scholarships will open on August 1st!
• Celebrating Excellence: Dr. Marc Riedl Appointed as HAE Community Endowed Chair in Angioedema Clinical Excellence
• Sanyu Shares “A Day In Her Life as a Young Adult on Preventative Medication” - Listen to the #BeyondHAE Podcast
• Make Time for Mindfulness with the HAEA CARE Groups
• Clinical Trial Updates
• Social Media Snapshots

NEWSLETTER

June 2024

Topics include:
• Participate in a Ground-Breaking Research Study focusing on Caregivers for people with HAE
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: US HAEA National Summit Ask the Experts Q&A
• Read the HAEA Community Blog: “The Power of Prevention to Address the Burden of HAE”
• Educating Medical Professionals on HAE Through the CME Program
• Explore Nature as a Form of Self-Care During the HAEA CARES Groups
• Read our Clinical Trial Updates and Choose to be Part of Winning Approval for the Next Generation of HAE Therapies
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

May 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Kailani Shares "A Day In Her Life as a Caregiver" - Listen to the #BeyondHAE Podcast
• Read the HAEA Community Blog: “If You Asked Me About My Attacks”
• Educating Medical Professionals on HAE Through the CME Program
• Use hae day :-) as an Opportunity to Share Your Story in the HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

April 2024

Topics include:
• Brighten the Future for the HAE Community this hae day :-) on May 16th!
• Exciting Research Advances in HAE with Normal C1-Inhibitor
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Listen to the HAE Speaks Podcast: My Cross-Country Trip Across the United States to Raise HAE Awareness
• Learn How to Build a Successful Self-Care Routine Through the HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER