HAEA in Action

Sep

September 2021 Newsletter
Topics include: The 2021 US HAEA Virtual Summit Series programs are now available for on demand streaming! , The US HAEA Sponsors Ground-breaking Research Study on Quality of Life for People with HAE, Save the Date! 2021 HAEA Virtual Capitol Hill Day Friday, October 15, 2021 - 1:00 PM ET, HAEA Webinar Brief: Coverage, Access and Insurance, Your Opinion Matters! , The Pam King HAEA Scholarship Program is NOW Accepting Applications for the Spring 2022 Semester!, It’s Back to School Season and Nico is ready to join you in school!, Health Insurance Plan Choices, HAEA Caring for Caregivers Program, HAEA Healthcare Hero Recognition Program, HAE Speaks Podcast, #BeyondHAE Youth Podcast - September Episode , It’s Back to School Season!, HAEA Cares Kits, Clinical Trial Updates , HAEA Virtual Meet & Greet Events, HAEA Treatment Education Series Webinar




Aug

August 2021 Newsletter
Topics include: Explore the new and improved HAEA Website! , Emerging Challenges with Insurance Reimbursement for HAE Medicines could affect all of us, Your Opinion Matters! , Thank you for participating in the 2021 HAE IN-MOTION® Virtual Challenge! , The Pam King HAEA Scholarship Program is NOW Accepting Applications for the Spring 2022 Semester!, Why is trauma considered a trigger for Hereditary Angioedema (HAE) attacks?, Get ready for the new school year with the HAEA Health team!, HAEA Healthcare Heroes Recognition Program, HAE Speaks Podcast, #BeyondHAE Youth Podcast - August Episode , HAEA Cares Kits, Clinical Trial Updates , HAEA Treatment Education Series Webinar, HAEA Virtual Meet & Greet Events




Jul

July 2021 Newsletter
Topics include: Want to learn about the latest developments in HAE therapies? , US HAEA Initiates Ground-Breaking Research, Join Us and Register for the 2021 HAE IN-MOTION® Virtual Challenge TODAY!, The HAEA is Pleased to Announce a Free Continuing Medical Education (CME) Program for Medical Professionals, How to address stress and anxiety associated with the unpredictability of Hereditary Angioedema (HAE)?, HAEA Health Updates, HAEA Healthcare Heroes Recognition Program, HAE Speaks Podcast, The Brady Club Summer Activity Book is HERE!, The third book in the HAEA Children’s Book Series is NOW Available!, #BeyondHAE Youth Podcast - July Episode, Clinical Trial Updates , HAEA Virtual Meet & Greet Events, HAEA Treatment Education Series Webinar




Jun

June 2021 Newsletter
Topics include: Save the date for the next 2021 Virtual Summit Series Session on Wednesday, June 16th!, The US HAEA community is taking action for HAE with the 2021 HAE IN-MOTION® Virtual Challenge!, HAEA Health Summer Travel Tips, The HAEA is pleased to announce a Free CME Program for Medical Professionals , HAEA Healthcare Hero Recognition Program!, HAE Speaks Podcast, Introducing HAEA Cares Kits!, The Brady Club invites children to share their story!, The third book in the HAEA Children’s Book Series is now AVAILABLE!, #BeyondHAE Youth Podcast - June Episode, Make 2021 the Year to Join the Advance HAE Scientific Registry! , Clinical Trial Updates, HAEA Treatment Education Series Webinar, HAEA Virtual Meet & Greet Events




May

May 2021 Newsletter
Topics include: Kick Off the 2021 HAEA Virtual Summit Series By Joining Your HAEA Friends on May 16th!, hae day :-) 2021: Our day to Take Action for HAE!, HAE International (HAEi) marks the 10th Anniversary of hae day :-), Get ready to raise HAE awareness with our 2021 HAE IN-MOTION® Virtual Challenge!, HAEA Health Updates, Legislative Update, Congratulations to the Fall 2021 Pam King HAEA Scholarship Recipients!, HAE Speaks Podcast, HAE Hot Topics: Tips for College Students with HAE, HAEA Spotlight, The Brady Club invites children to share their story!, The HAEA Children’s Book Series will celebrate the release of its third book in the series on May 16th during the HAEA Virtual Summit Series, #BeyondHAE Youth Podcast - May Episode, Make 2021 the Year to Join the Advance HAE Scientific Registry! , Is vaccination for COVID-19 suitable for people with Hereditary Angioedema (HAE)?, Clinical Trial Updates , HAEA Treatment Education Series Webinar: Stop Letting HAE Attacks Interrupt Your Life, HAEA Virtual Meet & Greet Events




Apr

April 2021 Newsletter
Topics include: 2021 HAEA Virtual Summit Series, HAEA Health Update, HAE Speaks Podcast, HAE Hot Topics: Taking Care of Your Mental Health, HAEA Spotlight, Brady Club Activity Books are here!!, Calling all Families!, #BeyondHAE Youth Podcast - April Episode , Make 2021 the Year to Join the Advance HAE Scientific Registry! , What is the best way for people with Hereditary Angioedema (HAE) to approach exercise? , Clinical Trial Updates, HAEA Virtual Meet & Greet Events




Mar

March 2021 Newsletter
Topics include: 2021 HAEA Virtual Summit Series, Advances in HAE Research , The Pam King HAEA Scholarship Program is NOW Accepting Applications for the Fall 2021 Semester, HAEA Health Update, IN CASE YOU MISSED IT: COVID-19 WEBINAR BRIEF, The HAEA is offering Scholarships for Youth and Young Adults with HAE to enroll in a Music Therapy Program. , HAEA Youth #TogetherApart Meet and Greet Events!, HAE Speaks Podcast, HAE Hot Topics: Living with a Disease that is Predictably Unpredictable..., HAEA Spotlight, Brady Club, Calling all Families!, #BeyondHAE Youth Podcast - March Episode , Make 2021 the Year to Join the Advance HAE Scientific Registry! , Should People with Hereditary Angioedema (HAE) Donate Blood?, Clinical Trial Updates , HAEA Treatment Education Series Webinar: Understanding the Generic Journey, HAEA Treatment Education Series Webinar: Is it Time to Rethink your Acute HAE Therapy?, HAEA Virtual Meet & Greet Events, Rare is Proud!




Feb

February 2021 Newsletter
Topics include: 2021 HAEA Virtual Summit Series, Rare Disease Day Campaign: #RareisProud!, 2021 HAEA Legislative Grassroots Advocacy: Join in to protect the rights of people with HAE, The Pam King HAEA Scholarship Program is NOW Accepting Applications for the Fall 2021 Semester, HAE Health Update , HAEA Youth #TogetherApart Meet and Greet Events!, HAE Speaks Podcast, Using My HAE to Create Something Positive, HAEA Spotlight, Brady Club, Calling all Families!, #BeyondHAE Youth Podcast - February Episode, Make 2021 the Year to Join the Advance HAE Scientific Registry! , Clinical Trial Updates, HAEA Treatment Education Series Webinar, Virtual HAEA Meet & Greet Events




Jan

January 2021 Newsletter
Topics include: Happy New Year 2021!, Thank you for your continued support of the HAEA programs and services!, HAE expert physician Dr. Marc Riedl shares his thoughts about COVID-19 vaccination for people with HAE, HAE Health Update , HAEA Youth #TogetherApart Meet and Greet Events!, HAE Speaks Podcast, HAE Hot Topics: , HAEA Spotlight, Brady Club, #BeyondHAE Youth Podcast - November Episode , Calling all Families!, Clinical Trials, Make 2021 the Year to Join the Advance HAE Scientific Registry! , Virtual HAEA Meet & Greet Events




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