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The Brady Club

The Brady Club is an online, secure platform for children ages 4-12 diagnosed with HAE and their siblings. This page is for our youngest members to enjoy fun activities that help them understand, manage, and cope with HAE, while inspiring them and connecting them with their peers.

  • Kids can join Brady the Bear for fun and interactive activities that teach about living with HAE. They will also be able to upload their artwork, share their own stories, and play Brady's matching game.
  • When your child is signed up to become a Brady Club Member, they will also receive FREE quarterly Activity Books in the mail!

The Brady Club

Brady Club Activity Books

Brady Club Members are automatically signed up to receive quarterly Activity Books that are mailed directly to them. The Activity Books are filled with fun activities, stories from other members, jokes, and more! Sign your child up today and we will send the most recent Activity Book along with a BONUS collectable sticker.


Download a Sample
HAEA Children's Book Series

HAEA Children's Book Series

The US HAEA teamed up with children's author Caryn Sonberg Seiler to develop a three-book series that will help kids learn about Hereditary Angioedema (HAE) in a relatable and interesting way. The books are designed for kids with HAE and their siblings who are starting to learn about dealing with the condition. The books offer quick definitions for tougher words. Parents will enjoy reading this first-of-its-kind storybook series with their kids.

Order a Book

Interactive Activities

Interactive Activities

We're excited to introduce a series of fun and interactive HAE activities for your kids to enjoy while also learning about HAE. The activities are divided into three sections:

1) Brady Club Learning
2) Brady Club Vocabulary
3) HAEA Children's Book Series Learning Activities

The programs are designed to help ease the burden on parents when explaining HAE to their young ones.

To access the activities, simply register or log-in to the Brady Club Website and click on Fun Activities in the dropdown menu.

LOG-IN TO THE BRADY CLUB

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There are many fun ways to get involved with the HAEA's Youth Program – connect with other young people, learn about HAE, and make a difference in your community!

These activities are specifically designed to reach and connect kids and young adults living with HAE and their caregivers.

HAEA Youth Program

Get involved with the HAEA and connect with peers who are also living with HAE through our youth program! The HAEA Youth Program fosters engagement and interaction at conferences, and other youth events while helping develop a strategy to best meet the needs of young people with HAE and their caregivers. Sign up for our youth program today to receive updates on the latest youth focused news, opportunities, and events.

JOIN THE YOUTH PROGRAM

Youth Activities

#BeyondHAE Challenge

Join The #BeyondHAE Challenge!

We'd like to invite you to participate in the #BeyondHAE Challenge! We want to know who you are #BeyondHAE. What do you do for fun? What subjects are you studying in school? What do you do #BeyondHAE?! Join the challenge by posting a photo or video to Instagram or TikTok using the hashtag #BeyondHAE.

How to Participate:
  • Post a photo or video of yourself doing something fun at home
  • Use the hashtag #BeyondHAE in your post
  • If posting on Instagram, tag @haeayouth
  • We've created a Facebook profile frame that allows you to easily add the #BeyondHAE logo to your profile picture. Go to your profile picture, click edit, click the add frame and search for #BeyondHAE.
Order your #BeyondHAE sticker here.

Apply for a Pam King HAEA Scholarship

The Pam King HAEA Scholarship Program provides financial support for young people with HAE seeking to improve their lives through academic achievement. College scholarships are available to US citizens who are diagnosed with HAE. They are awarded to students who demonstrate the characteristics that Pam brought to the HAE community: relentless hard work, resilience, courage, and passion.

Applications for the Spring 2022 semester open August 1

LEARN MORE
youth leaders

Youth Leadership Council

This group of young HAEA leaders is always ready to offer a friendly smile and support to their peers! Our goal is to engage in peer to peer support with diagnosed HAE youth and youth family members, serve as youth leaders at advocacy events, and participate in legislative visits to Congress in the Nation's Capital.

YLC members are very active and participate in multiple events:

  • PLAY a special role at HAEA conferences and youth-specific events
  • SERVE as youth leaders at advocacy and hae day :-) events
  • ADVOCATE for people with HAE during the HAEA Capitol Hill Day
  • EDUCATE members of their community on HAE
  • INSPIRE and engage peers and offer support for HAE diagnosed youth and their family members
  • And MORE!

One of the chief tasks of YLC members is to help identify the needs of young people with HAE and their caregivers. Do you have ideas, questions, or just want to find a friend who shares your experience living with HAE?

Learn more about the YLC

girl attending a youth webinar

HAEA Youth Edition Webinar: Finding Your Voice and Advocating for Yourself at School

It is important for kids and teenagers with HAE to be able to communicate to others when they feel an attack coming. This does not come naturally to most children and often takes time and practice. This Youth Edition Webinar will focus on providing encouraging tips to kids and teens to feel comfortable being assertive about their needs.

ACCESS YOUTH WEBINARS

#BeyondHAE Podcast

The #BeyondHAE Podcast is a series dedicated to serving young people affected by Hereditary Angioedema (HAE). Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that - an opportunity for young people affected by HAE to share their unique stories with you! The #BeyondHAE Podcast is available on all major podcasting platforms.

Podcast icon Listen here:
https://anchor.fm/haeayouth+

HAEA Youth Legislative Advocacy Training Workshop

The HAEA Youth Advocacy Program encourages young people to be active players in shaping the perspectives of elected representatives in Congress. By participating in HAEA Youth Advocacy initiatives, we can amplify our collective voices to ensure that issues important to people affected by HAE are heard in the states' and federal governments.

Program Goals:

  • Educate youth and young adults about the importance of playing an active role in advocacy and HAE legislative programs
  • Empower young people to become HAE advocates and to ensure they have a growing impact on public policy that affects the HAE community
  • Instill confidence in the next generation of HAE community leaders
  • Have HAE youth advocates representing each US state
  • Act decisively on behalf of the HAE community

GET STARTED

Don't forget to check out the YOUTH RESOURCES PAGE for more content specifically for kids and young adults.

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Order an HAEA Cares Kit for Kids, Teens, and Young Adults

Learning to cope with HAE can be particularly challenging for kids, teens, and young adults. The HAEA Cares Program is now offering personalized support kits that we mail directly to them.

*One kit per person and the individual must be a member of the US HAEA to qualify.

Request a kit today!

HAEA Parent Edition Webinar: Advocating for Your Child at School

One of the most important ingredients to a successful school year is an effective partnership between the student, parents, and the school. Working with your child's school is critical to ensuring that everyone is on the same page and knows what to do when there are unplanned absences or an HAE attack at school. Our guest speaker, Lisa Layera, is a mother and advocate for her three children who all have HAE. She will be sharing some of the lessons she has learned over the years to foster a meaningful and fruitful partnership with her children's school.

ACCESS WEBINARS HERE

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