- ABOUT HAE
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- ER Toolkit
The Brady Club is an online, secure platform for children ages 4-12 diagnosed with HAE and their siblings. This page is for our youngest members to enjoy fun activities that help them understand, manage, and cope with HAE, while inspiring them and connecting them with their peers.
Brady Club Members are automatically signed up to receive quarterly Activity Books that are mailed directly to them. The Activity Books are filled with fun activities, stories from other members, jokes, and more! Sign your child up today and we will send the most recent Activity Book along with a BONUS collectable sticker.
The US HAEA teamed up with children's author Caryn Sonberg Seiler to develop a three-book series that will help kids learn about Hereditary Angioedema (HAE) in a relatable and interesting way. The books are designed for kids with HAE and their siblings who are starting to learn about dealing with the condition. The books offer quick definitions for tougher words. Parents will enjoy reading this first-of-its-kind storybook series with their kids.
Order a Book
These activities are specifically designed to reach and connect kids and young adults living with HAE and their caregivers.
Get involved with the HAEA and connect with peers who are also living with HAE through our youth program! The HAEA Youth Program fosters engagement and interaction at conferences, and other youth events while helping develop a strategy to best meet the needs of young people with HAE and their caregivers. Sign up for our youth program today to receive updates on the latest youth focused news, opportunities, and events.JOIN THE YOUTH PROGRAM
We'd like to invite you to participate in the #BeyondHAE Challenge! We want to know who you are #BeyondHAE. What do you do for fun? What subjects are you studying in school? What do you do #BeyondHAE?! Join the challenge by posting a photo or video to Instagram or TikTok using the hashtag #BeyondHAE.
The Pam King HAEA Scholarship Program provides financial support for young people with HAE seeking to improve their lives through academic achievement. College scholarships are available to US citizens who are diagnosed with HAE. They are awarded to students who demonstrate the characteristics that Pam brought to the HAE community: relentless hard work, resilience, courage, and passion.
Applications for the Spring 2022 semester open August 1
This group of young HAEA leaders is always ready to offer a friendly smile and support to their peers! Our goal is to engage in peer to peer support with diagnosed HAE youth and youth family members, serve as youth leaders at advocacy events, and participate in legislative visits to Congress in the Nation's Capital.
YLC members are very active and participate in multiple events:
One of the chief tasks of YLC members is to help identify the needs of young people with HAE and their caregivers. Do you have ideas, questions, or just want to find a friend who shares your experience living with HAE?
Learn more about the YLC
It is important for kids and teenagers with HAE to be able to communicate to others when they feel an attack coming. This does not come naturally to most children and often takes time and practice. This Youth Edition Webinar will focus on providing encouraging tips to kids and teens to feel comfortable being assertive about their needs.
ACCESS YOUTH WEBINARS
The #BeyondHAE Podcast is a series dedicated to serving young people affected by Hereditary Angioedema (HAE). Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that - an opportunity for young people affected by HAE to share their unique stories with you! The #BeyondHAE Podcast is available on all major podcasting platforms.
Learning to cope with HAE can be particularly challenging for kids, teens, and young adults. The HAEA Cares Program is now offering personalized support kits that we mail directly to them.
*One kit per person and the individual must be a member of the US HAEA to qualify.
Request a kit today!