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The HAEA is committed to helping people with HAE overcome barriers, successfully manage their HAE, and lead a normal life. Here, you can find links to important resources that will help you through your HAE journey.
The Center at UCSD, in partnership with the US HAEA, aspires to improve the lives of angioedema patients throughout the world.
The HAEA unifies and empowers the HAE community. We offer a broad range of activities and programs that encourage members to educate, engage, and raise HAE awareness within their own local communities.
You can help people with HAE avoid years of needless suffering. A picture of HAE swelling is the best way to alert physicians to test for the possibility of HAE. Do you have photos of yourself during an HAE attack? The HAEA maintains a library of images that illustrate swelling attacks. The photos are part of the educational materials we provide to physicians and other medical professionals.SHARE YOUR PHOTO
Listen to people with HAE, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more. Download today on your favorite platform!LISTEN NOW
Gain exclusive access to informational webinars on issues like access and reimbursement for HAE therapies, check out the latest HAEA news, and participate in virtual support groups.JOIN NOW
This is a nationwide research project driven by you and your fellow HAE community members, where you can track and submit information about your HAE attacks, symptoms, and therapies. The data you provide is confidential and is the driving force behind new HAE research and discoveries.JOIN REGISTRY
Everyone who has HAE knows that its symptoms are astonishingly individual. No two people (even within the same family) share the exact same triggers, severity of attacks, or even the same journey to diagnosis. Every HAE story is unique and valuable. Click below to hear from others about their experiences with HAE, and to submit your own!SHARE YOUR STORY
Learn more about upcoming events in your area and virtual engagements, as well as ways to volunteer by clicking below.LEARN MORE
This educational resource offers important information from HAE experts that explains HAE attacks and provides guidance on treatment options. Your efforts to share this Toolkit will support people with HAE in your community and may help identify people who have swelling symptoms, but have not yet received a proper diagnosis.ORDER AN ER TOOLKIT