US HAE ASSOCIATION

Welcome to our home on the internet

 

THE HAEA CAFE

The new hotspot in town warm cups of compassion and a menu of resources

 

2016 HAE in Motion 5k

Run/ walk for awareness

 

Knowledge
is power

The better you know HAE
the more control you have over your life

 

LIVE THE LIFE YOU WANT

Join the US HAEA – because we are HAE

 

Academic Success for a Brighter Future

The US HAEA has a Scholarship Program

US HAEA

The US HAEA is a non-profit patient advocacy organization dedicated to serving persons with angioedema. We provide patients and families with a support network and wide range of services.

WE ARE
  • PATIENTS
  • CAREGIVERS
  • UNBIASED
  • RELIABLE
  • HERE FOR YOU
  • HAE.
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Patient Advocates

We are here to help you –  and we know what we talk about.
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HAE friends

We will help you connect with other patients and caregivers – join our family.
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Advocacy

We advocate for you and your family – locally and nationally.
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One-stop shop

We are your unbiased source for the latest HAE news and information.
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HAE Research

We support research to find a cure for HAE.
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HAE Treatments

We provide you with an overview of all FDA approved HAE medication.

Living with HAE

Some typical questions and situations in your life

Treatments
How can HAE be treated? We give you an overview of all FDA approved medication!

Attack Triggers
How can you identify an attack – and what triggers should you be aware of. Let us guide you!

Angioedema Center
Where can you get help? The US HAEA Angioedema Center at UCSD is a world class treatment center!

Traveling
What do you need to be aware of when traveling? Here are some tips when traveling!

The section Living with HAE contains a wealth of useful information for both patients and care givers. We just got started – discover topics like: Just diagnosed; pregnancy; sports and leisure; study and worklife; patient stories and much more…

Say HI to Sally

– and her collegues at our
patient advocates team

CALL US, We´re here to help

(866) 798-5598

This is why

WE ARE HAE.

Make a difference

Join HAEA

Take advantage of the various social media outlets we provide to help our members share HAE stories, share HAE news and events, and offer support to one another.

HAEA Café
Chat with Patients Advocates Team

Grab a cup, and lets chat

Please use tags in your social posts to spread the HAE word
#HAEA
#RAREDISEASE
#WEAREHAE
#OTHER TAGS

In patients’ own words

Every story is unique and valuable

Everyone who has HAE knows that its symptoms are different for each individual. No two people share the exact same triggers, severity of attacks, or even the journey to diagnosis.

For professionals and healthcare providers

A summary of our services for healthcare providers

  • US HAEA Angioedema Center at UC San Diego

    This international reference center is staffed by world class HAE physicians/researchers and will provide immeasurable opportunities to better the future of all who suffer from angioedema or swelling.

  • Recommendations for the Management of HAE.

    US HAEA partnered with its Medical Advisory Board (MAB) to write and publish a first of its kind set of guidelines for the treatment of Hereditary Angioedema.

  • Treatments

    Acute attacks, short & long term prophylaxis, children and more.

  • HAE symptoms

    Hereditary Angioedema (HAE) patients experience recurrent episodes of swelling in the hands, feet, face, gastrointestinal tract, genitals, and larynx (throat) that can last from two to five days

  • HAE Attack Triggers

    Most Hereditary Angioedema (HAE) attacks occur spontaneously with no apparent reason; however anxiety, stress, minor trauma, surgery, and illnesses such as colds and flu are triggers

  • Pathophysiology

    Hereditary Angioedema (HAE) patients have a defect in the gene that controls the plasma protein C1-inhibitor.

2016 Core Program Support Provided by