Patient Advocates
We are here to help you – and we know what we talk about.
HAE friends
We will help you connect with other patients and caregivers – join our family.
Advocacy
We advocate for you and your family – locally and nationally.
One-stop shop
We are your unbiased source for the latest HAE news and information.
HAE Research
We support research to find a cure for HAE.
HAE Treatments
We provide you with an overview of all FDA approved HAE medication.
Living with HAE
Some typical questions and situations in your life
The section Living with HAE contains a wealth of useful information for both patients and care givers. We just got started – discover topics like: Just diagnosed; pregnancy; sports and leisure; study and worklife; patient stories and much more…
This is why
WE ARE HAE.
Make a difference
Join HAEA
Take advantage of the various social media outlets we provide to help our members share HAE stories, share HAE news and events, and offer support to one another.
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HAEA Café
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Please use tags in your social posts to spread the HAE word
#HAEA
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Latest HAE related topics & News
CSL Behring announced today that the U.S. Food and Drug Administration (FDA) has accepted for…
Sponsored by the US HAEA, this groundbreaking scientific proceedings is summarized for you below. You...
For professionals and healthcare providers
A summary of our services for healthcare providers
US HAEA Angioedema Center at UC San Diego
This international reference center is staffed by world class HAE physicians/researchers and will provide immeasurable opportunities to better the future of all who suffer from angioedema or swelling.
Recommendations for the Management of HAE.
US HAEA partnered with its Medical Advisory Board (MAB) to write and publish a first of its kind set of guidelines for the treatment of Hereditary Angioedema.
Treatments
Acute attacks, short & long term prophylaxis, children and more.
HAE symptoms
Hereditary Angioedema (HAE) patients experience recurrent episodes of swelling in the hands, feet, face, gastrointestinal tract, genitals, and larynx (throat) that can last from two to five days
HAE Attack Triggers
Most Hereditary Angioedema (HAE) attacks occur spontaneously with no apparent reason; however anxiety, stress, minor trauma, surgery, and illnesses such as colds and flu are triggers
Pathophysiology
Hereditary Angioedema (HAE) patients have a defect in the gene that controls the plasma protein C1-inhibitor.
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