You’re invited to a special HAEA Community Connections event at the Oregon Zoo in Portland.
Join us for a family-friendly HAEA Community Connections event designed to bring our community together! Join us for a day at the zoo and an afternoon of connection with several members of the HAEA team.
This family-friendly event is a wonderful opportunity to connect with HAEA community members in your area, meet HAEA staff, and spend time with people who truly understand life with HAE. We encourage you to bring your entire family and enjoy a fun afternoon of community, connection, and exploring the zoo together. Please note that all attendees, including family members and children, must register in advance so we can ensure admission and plan accordingly.
2026 HAE IN-MOTION® Pre-Registration Swag Bag Request Form
Please complete the form below to pre-register for the 2026 HAE IN-MOTION Virtual Event and request your FREE swag bag.
*Complete the steps below to secure your swag bag and for instructions on how to create your profile, track your progress, and fundraise through the Charity Miles App during the 2026 HAE IN-MOTION® virtual event taking place October 1st - October 31st.
Here’s how to get started:
1. Pre-register to receive your FREE Swag Bag.
2. Download the Charity Miles App via the App Store (for iOS devices) or the Google Play Store (for Android devices).
3. Complete the onboarding prompts to create your profile and connect to your phone's Health app to track your steps during the 2026 HAE IN-MOTION® virtual event taking place October 1st - October 31st. If asked to select a charity, search for "HAEA".
4. Get moving and show off your HAE IN-MOTION® swag with a photo to raise awareness for HAE!
We thank our generous sponsors!
Gold - Pharming
Silver - BioCryst & Takeda
Registration Opening Soon!
Registration Opening Soon!
Registration Opening Soon!
Registration Opening Soon!
Thank you for your interest in attending the 2027 US HAEA National Summit in Orlando, Florida, taking place July 15–18, 2027.
The 2027 US HAEA National Summit will bring together approximately 1,500 individuals with HAE, their families, caregivers, healthcare professionals, and industry partners for an extraordinary gathering that connects the HAEA community with the latest news, research, and developments.
Thank you again for your interest. Please check back for updates and registration announcements!
