We are committed to helping children of all ages and their families overcome barriers, successfully manage Hereditary Angioedema (HAE), and have a positive educational experience. Here are some helpful resources for kids – and their parents – that will guide your family's HAE journey.
Be sure to also check out our Youth Activities page for more information on our HAEA Youth Programs!
HAEA Youth Program
Get involved with the HAEA and connect with peers who are also living with HAE through our Youth Program!
Sign up for our Youth Programs today to receive updates on the latest youth-focused news, opportunities, and events.
HAEA Cares Kits
for Kids, Teens, and Young Adults
Learning to cope with HAE can be particularly challenging for kids, teens, and young adults. The HAEA Cares Program offers personalized support kits that are mailed directly to them.
*One kit per person and the individual must be a member of the US HAEA to qualify.
The Brady Club
This online, secure platform is for children ages 4-12 with HAE and their siblings. They can enjoy fun activities that help them understand, manage, and cope with HAE.
Children can join Brady the Bear and participate in fun and interactive activities to learn more about living with HAE. As a Brady Club member, kids will receive the Brady Activity Books FREE in the mail every quarter. These Activity Books are filled with games, stories from other members, jokes, and more!
Create a School Packet
Every family of a child with HAE has questions at the start of the school year. How will the school respond if my child misses too many days of school? How will my child make up missed assignments? An HAE school packet can be a great resource for you and your child's school. Preparing the packet ahead of time will help decrease stress and provide answers to the school staff.
Educate the School Nurse about HAE
Chances are your school nurse has never heard of HAE. A letter providing a brief introduction to HAE, an idea of what is needed if medical intervention is necessary, and emergency contact information can be a great help to you and the school. Parents should authorize contact between school health staff and your child's HAE physician, and a dedicated medication supply should remain with the school nurse.
SCHOOL NURSE LETTER
Consider Creating a 504 Plan
504 plans are formal plans that schools develop to give kids with certain disabilities or conditions, like HAE, the support they need and prevent discrimination. Consider meeting with the school to develop an accommodations plan for your child.
Prepare for College
For students with HAE who are entering college and planning to move away from home, we have some tips to consider to ensure a smooth transition.
COLLEGE PLANNING TIPS
The Pam King HAEA Scholarship Program provides financial support for people with HAE who are entering or attending college, and seeking to improve their lives through academic achievement.
Students across the United States receive scholarships for both the Fall and Spring academic semesters to help them achieve their academic goals.
• Awards are determined based on academic achievement and financial need
• All students with an HAE diagnosis are encouraged to apply
• Hundreds of scholarships have been awarded since the program launched in 2017
• Scholarship applicants must be members of the US HAEA
We congratulate our scholarship recipients and wish them much success in their academic endeavors!
"The Pam King HAEA scholarship has lightened the financial burden of college and allowed me to attend the school of my dreams. It has also provided opportunities for me to get more involved in HAEA and meet other college students and children with Hereditary Angioedema. I am so thankful for their generosity and interest in getting more people involved and giving back to our special community."
– Sydney, Texas Christian University
How to Apply
The Pam King HAEA Scholarship Program is available to US citizens with a confirmed HAE diagnosis (a letter from a licensed physician is required) who will be enrolled or are enrolled in an undergraduate educational institution. We also offer the scholarship to graduate and vocational students on a case-by-case basis. Your application will be reviewed by the Scholarship Committee, an independent adjudicatory board with no HAEA affiliation. Scholarships will be awarded based on a combination of financial need, academic effort, and individual educational goals. Awards will be sent directly to the institution that the student is attending and (depending on the institution's financial aid policies) may be used for tuition, books, and room and board.
Applications must be submitted online using the link below. All applicants will be notified by email regarding the results of the selection process. If you are awarded a scholarship, you must complete the school contact form within 30 days of being notified or your award will be forfeited. Once your form is received, payment will be provided in the form of a check made payable to the institution attended.
- February 1 – March 31: Applications Accepted
- May 1: Award Announcements
- August 1 – September 30: Applications Accepted
- November 1: Award Announcements