HAEA in Action

Sep

September 2020 Newsletter
Topics include: Registration is now open for the 2020 HAE IN-MOTION® Virtual Challenge., Interested in being part of discovering a new generation of HAE medicines? Then join the US HAEA Scientific Registry!, Important Survey on the health of people with HAE and their families in the COVID-19 era, Insurance Open Enrollment period starts on October 15, 2020, HAE Health Update, Legislative Update , The US HAEA can support your needs in Spanish, HAE Speaks Podcast, HAEA Patient Spotlight, Brady Club - Submit your Child’s Story! , NEWS ALERT! , #BeyondHAE Podcast - September’s Episodes, Clinical Trial Updates , Virtual HAEA Meet & Greet Events, HAEA Treatment Education Series Webinar: Navigating Virtual Appointments




Aug

August 2020 Newsletter
Topics include: Registration is now open for the 2020 HAE IN-MOTION® Virtual Challenge., Interested in being part of discovering a new generation of HAE medicines? Then join the US HAEA Scientific Registry!, Important Survey on the health of people with HAE and their families in the COVID-19 era, Insurance Open Enrollment period starts on October 15, 2020, HAE Health Update, Legislative Update , The US HAEA can support your needs in Spanish, HAE Speaks Podcast, HAEA Patient Spotlight, Brady Club - Submit your Child’s Story! , NEWS ALERT! , #BeyondHAE Podcast - September’s Episodes, Clinical Trial Updates , Virtual HAEA Meet & Greet Events, HAEA Treatment Education Series Webinar: Navigating Virtual Appointments, We need everyone to participate in a vitally important survey on whether HAE influences the risks of COVID-19, 2020 Virtual HAE IN-MOTION® Events, Preparing for a Successful School Year, You Can Count On Us, Legislative Update, The US HAEA can support your needs in Spanish, HAE Speaks Podcast, HAEA Patient Spotlight, Give back with your swell photos , Brady Club - Summer 2020 Activity Book, Nico’s Lunchbox Now Comes With Free Learning Activities, Pam King HAEA Scholarship Program, #BeyondHAE Podcast - August’s Episodes, In Case You Missed It - Parent Edition Webinar: Advocating for Your Child At School, Clinical Trial Updates, US HAEA Angioedema Center, Virtual Meet & Greet Events, HAEA Youth Edition Webinar: Finding your Voice and Advocating for Yourself at School, HAEA Treatment Education Series Webinar: HAE and Back to School




Jul

July 2020 Newsletter
Topics include: Registration is now open for the 2020 HAE IN-MOTION® Virtual Challenge., Interested in being part of discovering a new generation of HAE medicines? Then join the US HAEA Scientific Registry!, Important Survey on the health of people with HAE and their families in the COVID-19 era, Insurance Open Enrollment period starts on October 15, 2020, HAE Health Update, Legislative Update , The US HAEA can support your needs in Spanish, HAE Speaks Podcast, HAEA Patient Spotlight, Brady Club - Submit your Child’s Story! , NEWS ALERT! , #BeyondHAE Podcast - September’s Episodes, Clinical Trial Updates , Virtual HAEA Meet & Greet Events, HAEA Treatment Education Series Webinar: Navigating Virtual Appointments, We need everyone to participate in a vitally important survey on whether HAE influences the risks of COVID-19, 2020 Virtual HAE IN-MOTION® Events, Preparing for a Successful School Year, You Can Count On Us, Legislative Update, The US HAEA can support your needs in Spanish, HAE Speaks Podcast, HAEA Patient Spotlight, Give back with your swell photos , Brady Club - Summer 2020 Activity Book, Nico’s Lunchbox Now Comes With Free Learning Activities, Pam King HAEA Scholarship Program, #BeyondHAE Podcast - August’s Episodes, In Case You Missed It - Parent Edition Webinar: Advocating for Your Child At School, Clinical Trial Updates, US HAEA Angioedema Center, Virtual Meet & Greet Events, HAEA Youth Edition Webinar: Finding your Voice and Advocating for Yourself at School, HAEA Treatment Education Series Webinar: HAE and Back to School, HAEA Support Groups - You’re Not Alone!, Welcome our NEWEST Patient Health Advocate, HAE Health Update, Legislative Update , Order your FREE US HAEA Member ID Card , HAE Speaks Podcast, Give back with your swell photos, Brady Club Activities, Pam King HAEA Scholarship Program, #BeyondHAE Coloring Contest, #BeyondHAE Podcast - July’s Episodes, HAEA Patient Spotlight, Clinical Trial Updates, Summer Virtual Meet & Greet Events, HAEA Treatment Education Series Webinar: Self-advocacy, Insurance, & You: Navigating health insurance in times of transition, HAEA Parent Edition Webinar: Advocating for Your Child at School, HAEA Youth Edition Webinar: Finding your Voice and Advocating for Yourself at School, Brady Club - Summer 2020 Activity Book




Jun

June 2020 Newsletter
Topics include: HAEA Community Steps Up with a Virtual Walk for HAE Day :-), An Important Patient Survey, Member ID Cards, June Health Update, HAE Speaks Podcast, Swell Photos, #BeyondHAE Kids Coloring Contest, June Legislative Update, Youth Legislative Advocacy Training Program, Virtual Global Conference, HAEi #TogetherApart, Attack Support Kit for Kids, #BeyondHAE Podcasts, Patient Spotlight - Richard, Clinical Trial Updates, Summer Virtual Meet & Greet Events, Upcoming HAEA Treatment Education Series Webinar


May

May 2020 Newsletter
Topics include: A Message from Tony Castaldo, Learn about How to HAE (Host A “virtual” Event), 2020 hae day :-) Stepping Forward Together Virtual Walk, HAE Speaks Podcast, HAEA Virtual Meet & Greet Events, HAE Health May Updates, Legislative Update, Clinical Trial Updates, HAEA Youth Legislative Advocacy Training Workshop, Join The #BeyondHAE Challenge, HAE Attack Support Kit for Kids, May #BeyondHAE Podcast, Patient Spotlight, HAEA Treatment Education Series Webinar


Apr

April 2020 Newsletter
Topics include: A Message from Tony Castaldo, Important Information about HAE and COVID-19, April Health Tips, Legislative Update, Clinical Trials, Nico's Lunchbox, #BeyondHAE Challenge, HAE Attack Support Kit for Kids, Pam King HAEA Scholarship Program, #BeyondHAE Podcast, HAE and COVID-19 Webinar, HAEA Youth Edition Webinar, HAEA Treatment Education Series Webinar


Mar

March 2020 Newsletter
Topics include: A Message from Tony Castaldo, Countdown to HAE Day :-), Legislative Update, Insurance Denials, March Health Tips, Clinical Trials, Nico's Lunchbox, Cookies4HAE Webinar, #BeyondHAE Podcast, Patient Spotlight, Advocacy Webinar, Emotional Toll of Living with HAE Webinar, Upcoming Meet & Greet Events in Charlotte, Cincinnati, Puerto Rico & Boston


Feb

February 2020 Newsletter
Topics include: Legislative Update, Clinical Trials, Thank You to Facebook Fundraisers, Scientific Registry Quarterly Report, Pam King Scholarship Program, #BeyondHAE Podcast, Nico's Lunchbox, HAEA Spotlight, Youth Webinar, Treatment Education Series Webinar, Legislative Advocacy Webinar, Upcoming Meet & Greet Events in Atlanta, Charlotte & Cincinnati, HAE IN-MOTION® Fundraising & Awareness Events.


Jan

January 2020 Newsletter
Topics include: Happy New Year, Celebrating Thankuary, Healthy New Year Resolutions, #BeyondHAE Podcast Series, Nico's Lunchbox, HAEA Spotlight, HAE and Medicare Webinar, Brady Club Webinar, Upcoming Meet & Greet Events in Phoenix and Atlanta, 2020 HAE IN-MOTION® Fundraising / Awareness Events.


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