Noah, 16
Being a part of the Youth Leadership Council is extremely important to me. I value the work we do and hope that we can continue to change the HAE community for the better. We've been allowed to work with other people with HAE, and I'm extremely passionate about raising awareness and changing people's approach towards HAE. The Youth Leadership Council has allowed me to do just that and for that I'm grateful. #BeyondHAE I run track at a national level. I also do professional acting. I'm always looking for any opportunity to better myself and raise awareness!