US Hereditary Angioedema Association

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Printable Information

Printable Information

Understanding HAE - Patient Guide
Comprehensive Table of Angioedema Types
HAE Disease Information
Patient Declaration of Rights
Sample Physician Letter
Pediatric Management Guide
Download useful information on putting together a school packet
Download a sample letter for the nurse at your child's school
Download information about 504 Plans
2019 Annual Report
US HAEA Medical Advisory Board Recommendations for the Management of Hereditary Angioedema Due to C1 Inhibitor Deficiency
Create Your Own HAEA Fundraising Web Page
HAE Day Fundraising Guide

The US Hereditary Angioedema Association
10560 Main Street, Suite PS40
Fairfax City, VA 22030

CONTACT AN HAE ADVOCATE: (866) 798-5598

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The US Hereditary Angioedema Association (HAEA) is a 501(c)(3) non-profit organization.
© 2025 US Hereditary Angioedema Association

The HAEA is an advocacy and research organization committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which includes helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade our community’s quality of life through improving diagnosis and knowledge of the condition, and encourage an individualized approach to selecting an optimal treatment. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.

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