Whether you are planning to travel for business or pleasure, there are a few important considerations to help you prepare for a safe and successful trip.
Clearly mark and carry this with you on your phone and in your wallet, and ensure it’s easy to find. Include your HAE doctor, HAE Advocate and family members.
Ensure your HAE medication is always with you and easily accessible in your carry-on bag. Never check your medication in your suitcase, as it could be lost, delayed or damaged.
Although rarely requested by TSA, it is recommended to carry a physician's letter with you authorizing you to carry your HAE medication on board your flight. A written prescription for your HAE therapy is also a good idea to have on hand.
Check with your HAE Advocate for information on medical care options at your destination and along your route. Your HAE Advocate can assist with an HAE-knowledgeable physician referral or an area hospital where you might receive treatment if it were necessary.
Ensure you have enough HAE medication available for your trip and for a short time after you return, so you have time for a refill to arrive.
HAE attacks can be triggered by stress. Using these steps to plan ahead will help you feel in control and more relaxed when it comes time to travel.
The HAEA offers financial assistance for patients in need who must travel for HAE-related reasons through the Chris Whalen HAEA Compassion Fund. Our goal is to ensure that financial limitations are not a barrier to expert care.
Apply for Travel Assistance