US Hereditary Angioedema Association

Students with HAE can function to their maximum potential if their needs are met. With a full HAE management plan, they can enjoy better attendance, fewer restrictions on participation in physical activities and special activities (such as field trips) and fewer medical emergencies.

Family Responsibilities

Notify the school of your child's HAE diagnosis and supply school staff with their HAE management plan (keep the plan up-to-date)
Provide authorizations for administering medication and emergency treatment, signed by the your child's health care provider
Participate in the development of a school plan: 1) Meet with the school team to develop an accommodations plan (504 Plan) and 2) Authorize contact between school health staff and your child's HAE physician
Provide an adequate supply of acute HAE therapy, if you have it, in pharmacy-labeled containers, and other supplies to the school health staff. Replace medications and supplies as needed. A dedicated supply should remain with the school nurse
Provide the school with a way to contact you or another responsible person in case of an HAE attack and/or a medical emergency
Promote good general health, nutrition, and physical activity

Student Responsibilities

Notify an adult about any concerns and needs you may have managing your HAE at school
Participate in the care and management of your health as appropriate to your developmental level

Have a look at – and make use of – our school resources

With teamwork, student can manage their HAE and lead a normal school life!