Students with HAE can function to their maximum potential if their needs are met. With a full HAE management plan, they can enjoy better attendance, fewer restrictions on participation in physical activities and special activities (such as field trips) and fewer medical emergencies.
- Notify the school of your child's HAE diagnosis and supply school staff with their HAE management plan (keep the plan up-to-date)
- Provide authorizations for administering medication and emergency treatment, signed by the your child's health care provider
- Participate in the development of a school plan: 1) Meet with the school team to develop an accommodations plan (504 Plan) and 2) Authorize contact between school health staff and your child's HAE physician
- Provide an adequate supply of acute HAE therapy, if you have it, in pharmacy-labeled containers, and other supplies to the school health staff. Replace medications and supplies as needed. A dedicated supply should remain with the school nurse
- Provide the school with a way to contact you or another responsible person in case of an HAE attack and/or a medical emergency
- Promote good general health, nutrition, and physical activity
Have a look at – and make use of – our school resources
- Notify an adult about any concerns and needs you may have managing your HAE at school
- Participate in the care and management of your health as appropriate to your developmental level
With teamwork, student can manage their HAE and lead a normal school life!