Study and Work Life
"It is Impossible Not to Manage One's Health;
The Only Question - Is How One Manages."
Lorig & Holman, 2003
Self-management of a chronic illness like HAE extends beyond managing just the disease to managing the impact of its symptoms on everything we do – our occupations and our daily life.
People with HAE are able to create individualized management plans – optimally, following the 2020 Recommendations for the Management of HAE and in partnership with their HAE treating physician.
People with HAE are able to create individualized management plans – optimally, following the 2020 Recommendations for the Management of HAE and in partnership with their HAE treating physician.
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Work Life Being able to continue with a meaningful work life is fundamental for many of us to our identity and sense of self. Today, HAE patients can function fully in their day-to-day lives as they manage their disease with new FDA-approved treatments. Read more about what's important to continue in your chosen occupation. |
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Studying School age kids with HAE are not alone; chronic illnesses affect at least 10 to 15 percent of American children. With teamwork, students can manage their HAE and meet their maximum potential. A team approach means parents work together with schools, health care providers, and their community to provide a safe and supportive educational environment for their students with HAE; to ensure that these students achieve their educational goals. Read more about what responsibility both parents and the student have to meet the needs and ensure a normal school life for the student. |
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