A Message from
Tony Castaldo

US HAEA President & CEO

you are cordially invited!

The HAEA is pleased to announce that the 2023 US HAEA National Summit will take place in Orlando, Florida, July 20 - 23, 2023. The Summit theme is Living Beyond Boundaries and will bring the HAEA community together in-person for the first time in four years. Our goal is to once again unite people with HAE, caregivers, healthcare professionals, and industry partners for a transformative experience of learning and sharing.

The Summit will feature a highly relevant and engaging program that includes:

  • General sessions covering
    • the latest information on HAE therapies,
    • treatments on the horizon,
    • grassroots legislative initiatives,
  • Youth Health Management and Advocacy Training,
  • Brady Club Kids Workshops for the very young members of our community,
  • Professional-Scientific Track.

Historically, HAEA National Summits fulfill our community's enduring desire to learn more about HAE and what they can do to further improve quality of life.

We invite you to participate in and support this important event, and look forward to seeing you in Orlando.

Anthony Castaldo

US HAEA President & CEO


Summit Registration

If you wish to attend the Living Beyond Boundaries - 2023 US HAEA National Summit you must register online by July 3rd, 2023. Summit registrants will arrive from July 19th to July 21st (depending on flight options). Some families will arrive earlier to participate in the youth track that starts on Thursday. Attendees will participate in a half-day session on Friday afternoon followed by an evening Welcome Reception. On Saturday, July 22nd, the half-day morning Summit sessions will focus on contemporary issues affecting the HAEA community, including the latest information on health, advocacy, engagement, advances in research, and HAE therapies. Saturday afternoon will offer fun activities and free time to connect with friends old and new, with a special dinner and fun entertainment to end the day.

Registration types




(up to 4 members)


(5 or more members)

A Summit registration fee is required and includes access to ALL meals, general sessions, and special events at the Living Beyond Boundaries - 2023 US HAEA National Summit. Summit attendees must submit payment of the total conference registration fee along with their registration application - payable online via debit/credit card only. Space is limited and is provided on a first-come basis. You can register for the Summit at the bottom of this page.

Please Note: No HAE medicines or medical treatment will be available at the 2023 US HAEA National Summit. Please make sure to travel with sufficient HAE doses/medication - including prophylactic and/or acute therapy to manage any possible attacks. You will need to be able to self-administer your treatment - again, no HAE medicines or medical services will be available on-site. A local hospital Emergency Room will be alerted to possible triage needs for patients attending the summit and any/all emergencies will be directed to that hospital. If you wish to arrange for nursing help or other assistance yourself, please be aware that you do so at your own risk and expense.


Corporate & Industry:

If you are interested in becoming a sponsor of Living Beyond Boundaries - 2023 US HAEA National Summit, or to receive information on the sessions and special events, please contact Michelle Cuevas, Senior Executive VP & COO via email at michelle@haea.org.


Summit Information


Conference Grants

The deadline for submitting your grant application was February 28, 2023. If there are grants still available after this date, the HAEA will announce a second drawing. Please complete the grant section below if you would like to be waitlisted for a grant in the second drawing.


Professional - Scientific Track

The CME accredited Professional-Scientific Track will offer informative sessions on the latest research, HAE therapies, and results of the HAEA's pharmaco-economic study that addresses questions about the comparative economic value of prophylaxis versus on-demand therapy, and much more.


Youth and Young Adult Programs

The HAEA youth and young adult programs are designed to boost leadership skills, friendships, and mutual support among our young HAE patients and will be divided into unique tracks. Registration for the Brady Club Programs (ages 5-7 and 8-11), and the two Youth and Young Adult (ages 12-25) Programs is free.


Hotel Accommodations and Information

The conference is being held at the Rosen Shingle Creek® Hotel in Orlando, Florida. In order to ensure your participation at the Living Beyond Boundaries - 2023 US HAEA National Summit, you must 1.) register for the general session and events, and 2.) make your room reservations prior to (date to be announced). After that date, rooms at the discounted rate may no longer be available.


Safety Information


We understand the growing concerns around the rise of the COVID-19 and its variants throughout the United States. As a 2023 US HAEA National Summit participant, your health and safety are of our top priority. Please read below for more information on how we are planning to conduct a healthy and safe environment for all.

COVID – 19 Health & Safety FAQ's

  • We continue to follow the CDC guidelines, government and venue ordinances for Orlando, Florida. As of Friday, December 30, the Centers for Disease Control and Prevention expanded its guidelines recommending vaccinated people wear masks indoors in "high transmission" areas, regardless of their vaccination status. They HIGHLY recommend anyone who is not vaccinated to wear a mask indoors at all times.
  • We will continue to monitor these guidelines closely and provide timely updates accordingly to our attendees, sponsors, exhibitors and speakers.
  • We will have masks and hand sanitizers on hand at the event for anyone who wishes to use them.
  • All hotel staff including front desk, banquet staff, and audiovisual personnel will be wearing masks at the event.

  • While it is highly encouraged, we do not require anyone to receive a vaccination to attend our event.
  • For more information on how you can get vaccinated in your area prior to our event, please click here.

  • We will not be conducting temperature screenings upon check-in to the hotel or the event registration.

  • Attendee safety is our #1 priority and because so,

  • WE commit to the following:
  • Following CDC guidelines, government and venue ordinances closely
  • Allowing for proper social distancing within our event space
  • Providing masks and hand sanitizer for anyone who wishes to use them
  • Enhanced cleaning and sanitizing procedures for our event space

You can reach out to the hotel directly for more information about local health and safety requirements Toll Free at (866) 996-9939.