1. Carry Your HAEA Member ID Card Your HAEA Member ID Card contains vital information that can help healthcare providers understand your condition and treatment needs quickly in case of an emergency. Always keep it easily accessible when you travel, such as in your wallet or travel documents folder, and make sure a travel companion knows where to find it in case of emergency. Don’t have an HAEA Member ID Card? The HAEA will send you an editable PDF of the Member ID Card to print at home or carry digitally. You can order yours using the form
here. 2. Keep Medication HandyAlways keep your medication in your carry-on bag, not in checked luggage. Delays, lost luggage, or temperature fluctuations in cargo holds can affect your medication’s integrity. Pack enough medication for your entire trip, plus extra in case of unexpected travel delays. Be sure your medication is packed according to storage guidelines, and consider bringing a small cooler or insulated bag if temperature control is needed. Also, include any supplies you may require, such as syringes or infusion kits.
3. Bring a Doctor’s NoteA letter from your healthcare provider is essential when traveling with medication and supplies. The letter should state your diagnosis, the necessity of your medications, and provide instructions for emergency care. This document can be extremely useful at airport security and customs checkpoints and can also assist local healthcare professionals in the event you need medical attention while abroad. Keep this note with your HAEA Member ID Card for easy access. The HAEA has created a customizable Sample Physician’s Letter for your convenience. Click the links below to download and modify the letter to fit your specific HAE diagnosis, treatments and needs.
Word Document Link PDF Download Link 4. Know Your HospitalsBefore you embark on your trip, it’s important to research hospitals, urgent care centers, and emergency facilities near your destination. While it’s important to understand that most hospitals may not have HAE-specific therapies, it is still critical to go to the nearest emergency room for stabilization if you experience an attack. If your healthcare provider has recommended that you travel with your acute medication. Some hospitals may have restrictions on "brown bagging" medications, but still be sure to bring your acute treatment with you and inform your care team upon arrival. . Knowing your options and being prepared can offer peace of mind and allow you to act quickly and confidently in the event of an emergency.
If you’re unsure of where to find HAE-treating physicians in your travel area, our HAEA Health Advocates are here to support you. Our advocates can assist you in identifying knowledgeable HAE specialists to ensure you feel prepared and supported during your travels. To request assistance, please complete our Physician Referral Form
here.5. Order AheadPlanning ahead is essential for a smooth trip. Confirm that you have an adequate supply of medication well before your departure date. Work with your healthcare provider and specialty pharmacy to ensure that your medication is delivered in time. If you require temperature-sensitive medications or special delivery arrangements, plan for these logistics in advance. Consider keeping emergency contact information for your specialty pharmacy and healthcare provider handy in case of unforeseen issues.
6. Enjoy the RideAfter all the preparation, don’t forget the most important part: have fun! Travel is an opportunity to relax, explore, and create lasting memories. With careful planning, HAE does not have to limit your experiences. Take breaks, stay hydrated, manage stress levels, and listen to your body. The confidence gained from your preparation will allow you to focus on your adventure and make the most of your journey.
ConclusionTraveling with HAE is possible with the right preparation and mindset. By planning ahead and staying informed, you can focus on the excitement of your journey rather than worrying about potential challenges.
The HAEA is here to support you, even when you’re on the move. Stay connected through our website, support programs, and resources. If you’re a member of the HAEA community, you can also reach out for guidance before or during your travels. The US HAEA is proud to stand with you every step of the way. Safe travels!
For more information and additional resources, visit our HAEA Travel Resources page here: https://www.haea.org/pages/p/travel. We also encourage you to take advantage of our HAEA Academy Course, Travel and Emergency Preparedness, for more helpful information and tips linked
here.
