An Important Message About COVID-19
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Tony Castaldo, US HAEA President & CEO

Dear HAEA friends,

The HAEA cares deeply about the wonderful people in our community, so please accept my sincere hope that you and your families are remaining healthy and safe during this unprecedented COVID-19 Coronavirus pandemic. These are challenging times, and in the midst of all that is happening, please know that you are not alone. The HAEA is here for you. Our HAEA team will continue working tirelessly to keep you informed on important HAE-related issues that may come up as our governments and health care systems fight the pandemic.

You may be asking yourself whether having HAE increases the risk of contracting the coronavirus, having more complications, or developing a more severe case if infected. According to HAE physician Dr. Marc Riedl:

At this time, we have no specific research or data regarding coronavirus and HAE. Based on our understanding of HAE, it is currently thought that HAE or the HAE-specific medications used to treat the condition should NOT cause increased susceptibility to contracting coronavirus infection, or increased severity of infection if the virus is contracted.

We know that infections of any type may be a trigger for HAE attacks in some people. For this reason, it is important to make sure HAE medications are taken as prescribed and to keep prescriptions current. It is also vital that each person consider other non-HAE health conditions that may be specific risk factors of coronavirus and to follow ALL instructions from governmental and local health authorities. Contact your HAE physician if you have specific questions.

As the pandemic continues to evolve, we will continue to offer relevant, trustworthy information on how to stay physically and mentally healthy. I encourage you to take some time and watch our recent webinars on this topic:

COVID-19 Coronavirus Q&A with HAE physician Dr. Marc Riedl
COVID-19 Coronavirus and Staying Healthy Mentally

You can also stay up to date on the latest Congressional action regarding COVID-19 relief through our Legislative Updates.

Let me emphasize that our HAEA Health Advocates are always available to answer any questions, provide information, or just lend you an ear to share your concerns.

We are in this together! Please stay healthy and safe.

Tony Castaldo, US HAEA President & CEO

Tony Castaldo
US HAEA President & CEO

Welcome to the US Hereditary Angioedema Association, a non-profit advocacy organization serving patients with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet or face. Our association is a community of patients and loved ones who are leading the fight in HAE research, advocacy and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized patient support networks and a wide range of services to help people living with HAE lead a normal life.
Our Mission Mountain
OUR
MISSION

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering patient access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

Our Vision Eye
OUR
VISION

Unrestricted access to therapy so people affected by HAE are unburdened by symptoms and able to experience life to the fullest.

Our Values Hands
OUR
VALUES

To fulfill our community's highest priority needs with innovative programs, services, and activities that are delivered with an extraordinary level of empathy, kindness, and compassion.

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