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The US HAEA is a non-profit patient advocacy organization serving Hereditary Angioedema patients. Our Association was founded and staffed by HAE patients and caregivers. We provide the HAE community with a personalized support network and a wide range of services to help them lead a normal life.      


Our Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering patient access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

Our Vision:
Unrestricted access to therapy so people affected by HAE are unburdened by symptoms and able to experience life to the fullest.

Our Values:
To fulfill our community's highest priority needs with innovative programs, services, and activities that are delivered with an extraordinary level of empathy, kindness, and compassion.


The HAEA is a patient advocacy and research organization committed to actively engaging our community in a wide variety of grassroots activities that promote disease education and awareness. We provide personalized services to address the unique needs of HAE patients and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the patient quality of life through improving diagnosis and knowledge of the disease, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.

Living with HAE

Some Typical Questions and Situations in Your Life


How can HAE be treated? We give you an overview of all FDA approved medication!

Attack Triggers

Attack Triggers
How can you identify an attack – and what triggers should you be aware of. Let us guide you!

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Angioedema Center
Where can you get help? The US HAEA Angioedema Center at UCSD is a world class treatment center!


What do you need to be aware of when traveling? Here are some tips when traveling!


In Patients' Own Words
Every Story is Unique and Valuable

Everyone who has HAE knows that its symptoms are different for each individual. No two people share the exact same triggers, severity of attacks, or even the journey to diagnosis.

Read other patient stories, and share your own...