Patient Advocates
US HAEA Patient Advocates
Meet Your Patient Advocates!

We are either HAE patients ourselves or caregivers for HAE patients. We understand what it means to live with HAE.

HAEA Patient Advocates provide assistance that includes physician referrals, peer-to-peer support, guidance on access and reimbursement for your HAE medicines, and more.

We provide a wide range of personalized services for HAE patients and their families – we are here for you!


Important: Patients with the slightest hint of throat swelling should seek immediate medical attention (call 911) to ensure that their airway is not compromised.

John
John Williamson
(972) 984-0621
Senior Patient Advocate


John covers Arizona, Idaho, North Dakota, Nevada, Pennsylvania, Texas, Wyoming. John is also responsible for clinical trial referrals.
Jenny
Jenny Barnes
(252) 585-0763
Senior Patient Advocate


Jenny covers Alabama, Arkansas, Georgia, Illinois, Louisiana, Michigan, Minnesota, North Carolina, Oklahoma, & South Carolina
Sherry
Sherry Swanson
(815) 274-4206
Patient Advocate


Sherry covers Indiana, Kansas, Maryland, Nebraska, New Jersey, New Mexico, Ohio, Tennessee, Washington & Wisconsin

Lisa
Lisa Facciolla
(619) 723-7747
Patient Advocate


Lisa covers Connecticut, Delaware, Florida, Kentucky, Massachusetts, New Hampshire, New York, Rhode Island