Our patient community has come a long way in obtaining access to a number of HAE therapies. However, there are still many mysteries about HAE that we need to solve. By collaborating, and supporting research efforts, we can create a future that includes better care, earlier and more accurate diagnosis, and greater awareness for HAE patients so they can lead a normal life.
Together, we can drive the research, to resolve the remaining scientific secrets of HAE, and accelerate the advancement of future therapies. We encourage HAE patients, and family members to learn more... or enroll in the Scientific Registry today. Because HAE is a rare disease with a very small number of patients, the greater the community participation, the faster we can collect a sufficient amount of data to ensure scientific validity.
Join your fellow HAE patients in the nationwide movement that is driving HAE research and encourage your family members to support research as well. Together let's Advance HAE.
Register to become a member of the Advance HAE Scientific Registry and/or order an Advance HAE Info Kit, (using the form on the right) to learn more. If you have any questions, please email Registry Administrator, Janet Long at email@example.com.
Advance HAE Info Kits are FREE of charge. However, please consider making a donation to the US HAEA when you order your kit. Your optional gift has a significant and immediate impact on the US Hereditary Angioedema Association's (HAEA) ability to continue its mission: To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, diagnosis, empowering patient access to therapy, and fostering ground-breaking research that includes finding a cure.
January 2019: We are currently updating our materials for the Advance HAE Info Kits. Once they are ready, you will be able to order them again here. Please check back again soon.