Summit 2017
The National Patient Summit Registration is still open, but the deadline for Registration with grant requests has passed.

The US HAEA is excited to announce our upcoming National Patient Summit taking place from September 15th through 17th in Bloomington, Minnesota. This year's theme, "Stand Up Strong", is a unifying call to action for the HAE community and a celebration of work being done by HAE Heroes who make a difference every day by raising HAE awareness within their communities.

The 2017 meeting is open to the entire US HAEA patient community and will feature educational lectures, one-on-one learning opportunities with HAE expert physician/researchers, a fun evening that includes dinner and entertainment to enjoy with members of your HAE community, another exciting HAE IN-MOTIONĀ® 5K walk/run on 9/17/17, and much more!  (You will have an opportunity to register for the 5K after you register for the Summit.)

And, don't miss the HAEA Summit Youth Programs! This year's Youth Programs offer exciting events for children and teens attending the conference. There will be educational sessions, fun activities and time to get to know other kids and teens in the HAEA community. A super fun off-site TEEN trip for ages 12-17 is planned for Saturday, September 16, while kids 5-12 will enjoy their time together on-site at the SUMMIT venue.

SUMMIT Registration and Hotel Room Reservation Information
Registration fees (see below) include access to ALL meals, and sessions and special events at the US HAEA National Patient SUMMIT. SUMMIT attendees must submit the total conference registration fee along with their registration application - payable online via debit/credit card only. Space is limited and will be provided on a first-come, first-served basis. Preference will be given to those who have not previously attended an HAEA SUMMIT. You can register for the SUMMIT at the bottom of this page.

PLEASE NOTE: No HAE medicines or medical treatment will be available at the HAEA SUMMIT. Please make sure to travel with sufficient HAE doses/medication - including prophylactic and/or acute therapy to manage any possible attacks. You will need to be able to self-administer your treatment - again, no HAE medicines or medical services will be available on-site. A local hospital Emergency Room will be alerted to possible triage needs for patients attending the Summit and any/all emergencies will be directed to that hospital. If you wish to arrange for nursing help or other assistance yourself, please be aware that you do so at your own risk and expense.

Conference Grants
Conference registration is still open, but the deadline for Registration with grant requests has passed.

Summit Youth Program Registration
The HAEA SUMMIT Teen Program has been created for pre-teen and teens ages 12-17 who have been diagnosed with HAE or have an immediate family member diagnosed with HAE. The SUMMIT Kids Program provides an equally engaging program for kids ages 5-12. Registration for the Teen and Kids Programs is free.

If you are interested in having your child participate in either the Teen or Kids Program, you will need to mark the appropriate box on the online registration form. The name and age of each child is required. Once you have arrived at the SUMMIT, you will also need to complete permission/consent forms for each child attending either program. These will be available at the HAEA SUMMIT Registration Desk. Space is limited, so register your teen or child today!

Please Note: On-site registration for the SUMMIT Teen Program will not be available. Teens must pre-register. Childcare services will NOT be provided for infants and children younger than 5 years old.

Hotel Accommodations
Once you have registered for the HAEA National Patient SUMMIT, please make your hotel room reservations as well. The conference is being held at the DoubleTree by Hilton - Bloomington Minneapolis South, 7800 Normandale Blvd, Minneapolis, MN 55439.

As our room block cutoff date has passed, rooms at our discounted rate may no longer be available. You can contact the hotel to see what rooms are still available and the current room rate by using the link above or calling the hotel at (952) 835-7800. Maximum capacity is four (4) persons per room for a double-bedded room.

Hotel Cancellation Policy
Please be sure to carefully read the cancellation policy of the DoubleTree by Hilton - Bloomington Minneapolis South and follow their policy accordingly. For any additional questions or concerns regarding hotel reservations, please contact the US HAEA by emailing Summit@haea.org or by calling (866) 798-5598.

HAEA SUMMIT Cancellation Policy
If you need to cancel your registration for the US HAEA 2017 National Patient SUMMIT, please notify the HAEA by emailing Summit@haea.org or by calling (866) 798-5598 by August 1st, 2017. After this date, no SUMMIT registration fees can be refunded.

Register today for the HAEA 2017 National Patient Summit by completing and submitting the form below. Your submission acknowledges that you understand and accept that there will be NO HAE therapies (medicine) or medical treatment provided by the US HAEA at the 2017 US HAEA National Patient SUMMIT. Call your HAEA Patient Advocate if you have any questions.


All names entered for registration must be precisely as they appear on your photo ID.
Individuals not traveling with your party must complete their own registration.


Note: If you plan to arrive before 9/15/17, you will need to contact the hotel directly to extend your reservation and make the required payment.
Note: If you plan to depart after 9/17/17, you will need to contact the hotel directly to extend your reservation and make the required payment. Those registered for the 5K may be eligible to stay through 9/18/17, based on flight availability.