HAE Treatment Options

Because HAE symptoms are not the same for every person, you should work with your HAE treating physician to create an individualized treatment plan that best helps you to lead a healthy life.

Prior to 2008, the only treatments available for HAE in the United States were anabolic steroids (androgens) or antifibrinolytics.  Although effective, androgens may cause troubling side effects, such as liver problems, increases in cholesterol and weight gain.  Antifibrinolytics have been tied to abnormal heartbeat, muscle weakness and blood clots.

Important: Medicines used to treat swelling from allergies, such as corticosteroids (prednisone), antihistamines and epinephrine are NOT effective treatments for HAE.

  • icon

    FDA-approved treatments

    We have an updated list of FDA-approved treatments available to treat HAE

    See the FDA-approved list here

  • icon

    What treatments are available for children who have Hereditary Angioedema?

    One of the available FDA-approved HAE therapies may be an appropriate choice for use with children. Parents should work with their child’s HAE physician expert to create an individualized treatment plan for each child.

    Read more about treatments for children

  • icon

    What if I am pregnant?

    Studies report that pregnant women with HAE describe that pregnancy worsened symptoms or symptoms improved in equal percentages.

    Read more about HAE treatment and pregnancy

  • icon

    Are there any new treatments on the horizon?

    Clinical trials of investigational HAE therapies are still being conducted.
    More information can be found on our Clinical Trials page or contact a Patient Advocates Team member for more information.

    Take a look into the future for treatment of HAE

  • icon

    HAEA Patient Advocates

    HAE therapies provide an opportunity for HAE patients to lead a healthy life.
    US HAEA Patient Advocates Team members are available to provide information to help you and your physician choose a therapeutic approach that best fits your individual treatment needs

More HAE related articles that might interest you

HAE Clinical Trials

| Living with HAE, Treatment, What is HAE | No Comments
The US HAEA publishes any clinical trial information provided to us by our pharmaceutical sponsors...

What if I am pregnant?

| Living with HAE, Pregnancy, Treatment, What is HAE | No Comments

Studies report that pregnant women with HAE describe that pregnancy worsened symptoms or symptoms improved…

ACE Inhibitors

| Attack Triggers, Living with HAE, What is HAE | No Comments

ACE Inhibitors have been known to increase the frequency and intensity of HAE attacks. ACE…

 

24_7_outline

Call us 24/7

(866) 798-5598

The US HAEA Patient Advocates

We are here for you

All Patient Advocates are either patients themselves or caregivers for HAE patients.

We understand what it means to live with HAE and provide a wide range of services to HAE patients and their families.

Take Action

and make a difference

United we are strong and the more we all contribute the stronger and more powerfull we are.

Join the US HAEA Scientific Registry

 

Become a member of HAEA

 

Volunteer and make a difference

 

Become an advocate for HAE

Celebrate hae day :-)