For urgent assistance, please call:
Donna Davis (808) 216-1029
Michelle Williamson (972) 814-5205
or Lois Perry (559) 259-0572

 
  • The US HAEA is excited to announce the launch of a new Patient Empowerment Video Program.

    Click here to go to HAE Essentials – A Patient’s Guide, an e-Magazine containing a wealth of HAE information for patients, patient caregivers, family members and healthcare providers.

  • An Approach to the Diagnosis and Treatment of HAE

    A new consensus document that
    • sets the standard for the diagnosis and treatment of HAE in the US
    • can be used to advocate for excellence in HAE medical care

    Read more about it here….

  • The US HAEA also provides support for local small group meetings.
    Setting up a Community Support Luncheon is as easy as making a phone call!

    Click here for more information.

  • 0925 enrolled & counting…

    Our Scientific Registry allows researchers to better study HAE, working towards finding cures and improving patient care.

    Enroll in the Scientific Registry

    Go>

  • Living with a rare disorder doesn’t need to feel lonely. Numerous HAE patients and families across the country are sharing information, stories and support. We can add a pin on the map for you…

    Join the US Hereditary Angioedema Association community today.

What is HAE?

Hereditary Angioedema, or HAE, is a very rare and potentially life-threatening genetic disease that occurs in about 1 in 10,000 to 1 in 50,000 people. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, genitals, face, and airway or throat. In addition, patients often have bouts of excruciating abdominal pain, nausea and vomiting that is caused by swelling in the intestinal wall. Learn more>

Who is US HAEA?

We are a non-profit HAE patient organization. Learn more>

HAE News

May 16, 2012
Worldwide Recognition of hae day :-) Unites and Empowers the Global Hereditary Angioedema Community
Read more

June 2, 2012
Chicago, Il - Regional Patient Meeting
Read more

US HAEA Patient Services

Learn how we can help! Find a Patient Services Representative in your region.

Latest Patient Story

May 2012

My name is Lori.  I am 41 and I was finally diagnosed with HAE about two years ago. My symptoms started around age 14 with stomach swelling, vomiting and diarrhea.  Triggers at that time seemed to be stress.  I’ve missed several days of school and work over the last 27 years and I’ve had multiple [...]

Read Lori's story

A cause for celebration!

The HAEA has achieved its goal of getting a Congressional resolution that sets May 16 as HAE day. Click here to read this historic document.

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