There are several ways you can participate and help make hae day :-) a success!
1. Raise money
One of our biggest tasks as the HAEA community is to find a cure for HAE.
Research funds are needed to make this happen!
Hold a bake sale, help your kids set up a car wash, organize an HAE IN-MOTION 5k walk/race… there are so many creative ways (both big and small) to help raise research funds.
2. Raise awareness
Educate everyone around you about HAE. Contact your local media outlets and tell them your story. Contact your local ERs and medical service providers and provide them with information about HAE. We have put together a collection of materials you can use to educate those around you.
3. Raise enthusiasm
Last year’s “#myMove4HAE” campaign was another fun way to raise awareness of HAE. Stay tuned for news on how you can raise enthusiasm in 2017!
Then be sure to share your #myMove4HAE photo to HAEA’s Facebook group and upload it to your personal Facebook, Instagram, and Twitter pages – challenge your friends to make a move for HAE by tagging them and … Spread HAE awareness!
In 2013, the HAEA community rallied to support the TransPac Sailing Race virtual fundraiser.
In 2014, the HAEA community rallied to support the Kili Care Climb virtual fundraiser.
In 2015, the HAEA community rallied to support the largest number of individual events yet!
It is never too early to start planning your own hae day :-) educational event or fundraiser!