HAEA Events/ News

Read our SPRING 2009 NEWSLETTER.

Dec. 1 - Discovery Health channel will devote an episode of their program MYSTERY DIAGNOSIS to the story of one of our patients, Janet Long. Please check your local cable company to see if Discovery Health is available in your area and please be sure to check your local listings for the time the show airs in your area. Remember – this is a tv show, not a documentary, so please do invite your friends and family to watch!, but always direct folks to the HAE Association's website www.haea.org for the most accurate and patient oriented HAE-related medical information available anywhere.

Oct 31, 2008 - Read the highlights of the 2008 National Patient Conference

Sep 08, 2008 - Where in the world will George Plaster pop up next?

May 2, 2008 - The latest on C1-Inh approval in the US


Oct, 2007 - Read the highlights from our 2007 HAEA National Patient Conference in St. Louis, MO.

Jan 22, 2006 - HAE Association Update ...more

Jun 13, 2005 - Remarks of HAEA President at FDA Workshop on Plasma Proteins to Treat Rare Diseases ...more




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HAEA.org is supported by grants from the following biotechnology companies:
CSL Behring, Dyax Corporation, Genzyme Corporation, Jerini AG, ViroPharma, and Pharming NV