The HAEA youth and young adult programs are designed to boost leadership skills, friendships, and mutual support among our young HAE patients and will be divided into three unique tracks. Registrations for the Brady Club (ages 5-11), and the two Youth and Young Adult (ages 12-25) programs are free.
If you are interested in having your child participate, or if you are between the ages of 18-25 and would like to participate in the programs, you will need to mark the appropriate box on the online registration and complete the consent forms included. If more than one child in your family will participate in the programs, you must submit a separate registration for each child.
Space is limited, so register your teen or child today!
Please Note: On-site registration for the Summit Youth Programs will not be available. Participants must pre-register. Childcare services will NOT be provided for infants and children younger than 5 years old.
Global Summer Youth Advocacy Program (Ages 12-25): July 25-27
The Global Summer Youth Advocacy Program is a collaborative effort between the US HAEA and HAE International. HAEi is the international umbrella organization for the world's Hereditary Angioedema (HAE) patient groups.
Together, the US HAEA and HAEi have developed a comprehensive advocacy workshop designed to guide young HAEA members through the process of advocating for themselves and the HAE patient community. The workshop will bring young HAE patients from around the world for a two-day immersive learning session that includes lectures, project based activities, and fun group interactions.
The Global Summer Youth Advocacy Program invites dedicated and determined young people, interested in learning advocacy skills, participating in group activities, and working towards a common mission - raising HAE awareness. Educational sessions and lectures will be offered to all participants; however, project activities will be assigned by age groups.
Who is eligible: (1) Participants between the ages of 12 and 25. (Team projects will be assigned by age groups). (2) Youth who are diagnosed, or have a family member who is diagnosed with HAE. (3) Youth interested in learning about advocacy. (4) Youth committed to participating in all sessions of the 2-day workshop.
All youngsters accepted into the Global Summer Youth Advocacy Program are expected to attend all sessions and complete the assigned team projects in order to obtain the Advocacy certification and ensure future program invitations. Select participants will be scheduled to arrive on Wednesday, July 24th. Families coming in early to accompany participants will be responsible for their own meals and activities during the program dates.
This program includes off-site activities.
Youth Social Program (Ages 12-25): Saturday, July 27, 2019
This program is designed to help youth and their siblings impacted by Hereditary Angioedema become successful storytellers and to explore how they can create positive and lasting change within their community.
The program includes an off-site visit to the Atlanta Center for Civil and Human Rights to learn more about how civil rights activists and social change advocates use various media platforms (print, television, music, art, etc.) to communicate their message.
Back on-site, a Storytelling and Media Workshop with learning stations will educate youth on how to share their stories through film, photography, visual art, podcasts, screenwriting, and improvisation. The program will also teach how these creative resources can help them share their stories and serve as a powerful tool for advocacy.
*The general summit Youth Program will require participants to walk for approximately 10 minutes (.5 miles) across the park to the off-site activity at The Center for Civil and Human Rights, and back to the hotel for the Storytelling and Media Workshop.
Brady Club Program (Ages 5-11): Saturday, July 27, 2019
Developed for children ages 5-11 diagnosed with HAE and their siblings, this program will help the youngest members of the HAEA community better understand, manage, and cope with their disease while offering fun activities that inspire, empower, and connect HAEA kids!
This program is on-site.