One of the available HAE therapies may be an appropriate choice for use with children. Parents should work with their child’s HAE physician expert to create an individualized treatment plan for each child.
If your doctor is unsure about how to treat your child, please contact your HAEA Patient Advocates Team member and ask them to arrange a physician-to-physician consultation with one of the HAE experts at the US HAEA Angioedema Center at UCSD.
The US HAEA Medical Advisory Board has published an HAE management guideline in the prominent medical journal Pediatrics. Led by Dr. Michael Frank, this expert consensus paper provides evidence-based recommendations for the diagnosis and treatment of HAE in children. The publication is a valuable medical reference for the HAE community in our ongoing efforts to optimize care for children affected by HAE.
NOTE: The PDF linked to from this page (Frank MM, et al. Management of Children With Hereditary Angioedema Due to C1 Inhibitor Deficiency. Pediatrics. 2016; 138(5):e20160575) is a read-only document. It is for personal use only and may not be duplicated. For a printable copy, please go to http://pediatrics.aappublications.org/content/138/5/e20160575