Advances in Research
Advances in Research
Pioneering Innovations in HAE Science

The US HAEA Angioedema Center at UCSDThe US HAEA Angioedema Center at UC San Diego offers comprehensive care for patients with angioedema, state-of-the-art diagnostic tests and techniques, the latest available treatments, a full range of patient support programs, and cutting-edge angioedema research. The Angioedema Center, in partnership with the US HAEA, aspires to improve the lives of angioedema patients throughout the world.

The US HAEA Angioedema Center offers a unique "bench-to-bedside" approach to patient care and angioedema research. Our multidisciplinary team works together to determine the best treatment options available for each patient. Patients, along with their physician, decide on the best course of treatment. From research in genetics to the most advanced treatments, the Angioedema Center is at the forefront of angioedema research to benefit the patient community.

If you are interested in getting more information or setting up an appointment at the Center, contact our HAE Health Team,
or learn more about the U.S. HAEA Angioedema Center.

Scientific RegistryScientific Registry - Advance HAE
Join your fellow patients in the HAEA's nationwide research Registry. You can participate in this patient-driven research effort simply by sharing a small blood sample and your clinical information. Become a member today and play a crucial role in scientific advances that make it possible for researchers to resolve the remaining mysteries of HAE and accelerate the advancement of future therapies. Together, we can Advance HAE!

Learn more... or Enroll in the Scientific Registry today to help us find a cure!

Clinical TrialsClinical trials are studies in which people volunteer to test new drugs or devices. Clinical trials are crucial to learning whether a new treatment works and is safe for people. These kinds of studies are necessary to develop new treatments for serious diseases like HAE.

As new treatments are being developed, HAEA patients will again be offered the opportunity to take part in these important studies. The future is bright when we all support future research through clinical trial participation.

Please return to this page often to check for clinical trial updates. And contact any of the HAEA Patient Advocates to learn about the five FDA-approved HAE therapies currently available, that can revolutionize HAE patients' lives.

Upcoming Clinical Trial!

The U.S. HAEA is currently assisting BioCryst Pharmaceuticals in recruiting patients to be enrolled in the APeX-2 study, a worldwide clinical research study to investigate the safety and effectiveness of an investigational oral medication to prevent hereditary angioedema (HAE) attacks.

If you have Type I or II HAE, have regular attacks, and are interested in learning about an oral medication that could become an alternative to injections or infusions to prevent attacks, then please contact John Williamson see if you qualify.

Send an e-mail to John Williamson if you are interested in participating in a clinical trial, or would like more information about other HAE treatments under development. You may also reach him by telephone by calling (972) 984 - 0621.