Relieve your symptoms

Once you are diagnosed, you'll want to know how to avoid attacks and relieve symptoms


Support family testing

HAE is a hereditary disease and it's important to have your family members tested too.



Don't let HAE get in the way of doing what you love the most

Hereditary Angioedema (HAE)

Get to know the disease

Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face and airway.

In addition, patients often have bouts of excruciating abdominal pain, nausea and vomiting that is caused by swelling in the intestinal wall. Airway swelling is particularly dangerous and can lead to death by asphyxiation.


Patients with the slightest hint of throat swelling should seek immediate treatment to ensure that their airway is not compromised.

Attack Triggers

Do you know what causes HAE attacks?

Most attacks occur spontaneously, but you may be able to avoid attacks if you know the possible triggers

Diagnosing HAE

Get diagnosed and take control over your life

Once you get the right diagnosis you will be able to get the right treatment. Both you and your family should be tested as HAE is a hereditary disease.

HAE and Children

Can my child get HAE?

Yes, the gene defect that causes HAE can be handed down in
families – learn more.

HAE – the disease

What is Hereditary Angioedema (HAE)?

In short: HAE is defect in a gene and it’s a very rare disease. Get to know much more about the disease.


HAE symptoms or an allergic reation?

HAE causes swelling in the hands, feet, face, gastrointestinal tract, genitals, and throat – get tested if you have these symptoms.


Manage your disease with the right treatment

FDA has approved several therapies for HAE – get the one best suited for you and improve your life

Patient Advocates

All Patient Advocates are either a patient or caregiver and they are dedicated to providing a wide range of services to HAE patients and their families.

Or call us – we’re here to help: (866) 798-5598

HAE related Topics and News

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Tool Kit for hae day :-)

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Raise awareness – use the resources in the hae day :-) tool kit hae day...

Fundraising Guidelines for hae day :-)

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Use the hae day :-) fundraiser guidelines to make your event a success    ...

Holding an hae day :-) Event

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Organize an event on hae day :-) to create awareness or fundraise We are grateful...

How to Take Part in hae day :-)

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There are several ways you can participate and help make hae day :-) a success!...
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In patients’ own words

And these are Tads

“A lot has changed for me in the last few months.

I was diagnosed with HAE when I was 24 years old, almost by accident, at an emergency walk-in in 1992.”

Take Action

and make a difference

United we are strong and the more we all contribute the stronger and more powerfull we are.

Join the US HAEA Scientific Registry

Become a member of HAEA

Volunteer and make a difference

Become an advocate for HAE

Celebrate hae day :-)

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