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HAE is a rare, debilitating and often life-threatening genetic disease. Because HAE is so rare, it is often misdiagnosed or undiagnosed. The lack of disease awareness can be frustrating to HAE patients seeking not only an accurate diagnosis, but an individualized treatment plan that will help them lead a healthy, normal life.
If you do not already have an HAE knowledgeable physician, we can help with a physician referral. A physician referral is also helpful if you are traveling or moving to a new location.
Newly-approved HAE therapies offer treatment options. Familiarize yourself with all of the HAE treatments now available and those still to come to market, then work with your physician to create a treatment plan that fits your individual needs.
Whether you are already on a therapy for HAE or not, you may wish to check into HAE clinical trials that are currently recruiting participants.
As you live with HAE, it is important to be empowered to take charge of your own health.
HAE Patient Empowerment Program
Be sure to view our online HAE Patient Empowerment Program and take advantage of the HAE videos and print materials provided.
HAEA Patient Services Representative
And remember that your HAEA Patient Services Representative is always available to help with any questions you may have about treating your HAE.