Working together

Volunteer Today!

The work of the US HAEA is made possible to a large extent through the work of our member volunteers.

If you are interested in volunteering, we are thrilled that you want to help!

The HAEA’s web site ( serves as the principal resource for the best available HAE information and the HAEA Café serves as the online center of interaction within our patient community. But our volunteers add a more personal touch, acting as personal representatives of the US HAEA.

Thank you to all of our US HAEA volunteers. You help make a brighter future for all HAE patients!

Volunteer Today!

If you would like to donate your time and energy on behalf of the US HAEA, we offer a number of opportunities – you may choose to pursue all of them or just one. It is totally up to you!

There is strength in numbers as we advocate on behalf of our HAEA community. As always, we are here to answer any questions you may have or provide guidance as you engage in your chosen volunteer activities.  Simply email us at


Jump to our sections with comprehensive content and learn more


What is HAE

Get to know the disease: symptoms, diagnose, treatments and more

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For healthcare providers. Knowledge, CME-programs and more

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Living with HAE

Care takers and givers: HAE will affect your life - But you can still be in control.

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Our area with a lot of usefull information

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