Social media is about sharing stories, news and offering support.
Social media has evolved at an astonishing rate and the US HAEA is always works to provide the best communication platforms possible for our patient community. We hope you will take advantage of the various social media outlets we make available to our members to share HAE stories, news and events, information and to offer support to one another.
It is important for you to remember that these are public forums — they are not HIPAA compliant — and although we try our best, we cannot guarantee your privacy. Any questions regarding medical difficulties, physician referrals, medicines, etc. should be directed to your Patient Advocate.