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For Patients

Living with HAE

Discovering you have a rare, lifelong disease that will impact your life may feel daunting.

That’s why HAEA was founded — so people with HAE can learn how to live better, help find a cure, and simply connect with one another to share experiences.

Join today!

Don’t miss out! Get the latest on HAE therapies, research and events by joining the US HAEA.

We’re Here to Help!

Our Patient Services Team understand what it means to live with HAE. Contact a team member in your area.

Find a Doctor!

For patients needing assistance with a diagnosis, the US Hereditary Angioedema Association can help refer you to a physician who is knowledgeable about HAE.

Get Connected!

Join the HAEA community, and connect with other HAE patients and families through our active DiscussHAE Listserv or our Facebook Group.

1187 enrolled & counting!

Our Scientific Registry allows researchers to better study HAE, working toward improving patient care and finding a cure.

Enroll in the Scientific Registry »

HAE Essentials

Everything you want to know about HAE in an easy video series format.
Learn more>