Our Mission

Welcome to the US Hereditary Angioedema Association (HAEA). Founded and staffed by HAE patients and HAE patient caregivers, we are a non-profit patient advocacy organization dedicated to serving persons with angioedema.
The Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized patient support.
Our goal is to increase awareness of Hereditary Angioedema by providing patients and physicians with authoritative and readily accessible information. We are committed to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.


Lifelong health for HAE patients


To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering patient access to a suitable therapy, and fostering groundbreaking research that includes searching for a cure.


Fellow patients providing the HAE community with authoritative and unbiased information and highly personalized services with kindness and compassion.


Jump to our sections with comprehensive content and learn more


What is HAE

Get to know the disease: symptoms, diagnose, treatments and more

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For healthcare providers. Knowledge, CME-programs and more

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Living with HAE

Care takers and givers: HAE will affect your life - But you can still be in control.

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Our area with a lot of usefull information

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