Our Mission

Welcome to the US Hereditary Angioedema Association (HAEA). Founded and staffed by HAE patients and HAE patient caregivers, we are a non-profit patient advocacy organization dedicated to serving persons with angioedema.
The Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized patient support.
Our goal is to increase awareness of Hereditary Angioedema by providing patients and physicians with authoritative and readily accessible information. We are committed to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.

Lifelong health for HAE patients

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, timely and accurate diagnosis, empowering patient access to therapy and fostering groundbreaking research that includes finding a cure.

The US HAEA embraces the following values:

Respect for Others:
US HAEA members, directors, and staff value and respect all persons regardless of race, age, religion, economic level, sexual orientation. All persons are treated with honesty, integrity, compassion and fairness.
Commitment to Collaboration:
Participation of the patient community, as well as that of US HAEA directors and staff, is sought to clarify issues of community concern. Collegial relationships, collaboration, discussion, debate, and exchange of information is encouraged.

The US HAEA’s activities, including research and educational efforts, provide means to promote learning and convey information to interested parties. Members, directors, and staff value learning opportunities that improve its service to HAE patients.

Communications advance the US HAEA’s mission, increasing the impact of our programs and the effective use of our resources. Members, directors, and staff value clarity, coherence, and simplicity in communications. They listen and seek to learn from others in order to function with maximum efficacy.

The US HAEA’s funds belong to the community at large. Members, directors, and staff act as trustworthy and responsible stewards of these funds, seeking to direct resources with wisdom and compassion. They strive to ensure that future grant-making is relevant, effective, and efficient.

Jump to our sections with comprehensive content and learn more


What is HAE

Get to know the disease: symptoms, diagnose, treatments and more

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For healthcare providers. Knowledge, CME-programs and more

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Living with HAE

Care takers and givers: HAE will affect your life - But you can still be in control.

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Our area with a lot of usefull information

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