US HAEA Patient Declaration of Rights
HAE patients have the right to treatment that alleviates suffering and improves quality of life.
This Declaration–which is based on HAE physician treatment recommendations published in a medical journal–outlines the basic concepts of a sound approach to HAE treatment.
It can be shown to emergency room physicians, the doctor who is responsible for your day-to-day care, family members, and anyone else who plays a role in your HAE treatment.
US HAEA Vision Lifelong health for HAE patients
The US Hereditary Angioedema Association, Inc. (HAEA) is a non-profit patient advocacy organization founded by and staffed by HAE patients and HAE patient caregivers. The Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized peer support. Our goal is to increase awareness of Hereditary Angioedema by providing patients and physicians with authoritative and readily accessible information. We are committed to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.