Patient Stories Archive

Sep 2012: Roberto's Story

My name is Roberto. I live in Texas. I was diagnosed with Hereditary Angioedema when I was 8 years old. When I was 6, I was getting frequent attacks and doctors would just say it was allergies. They also thought my swelling was a side effect of my heart surgery three years before, but everything [...]

Read full story

Aug 2012: Joseph's Story

My name is Joseph. I am 73 years old and was diagnosed with HAE in 1970. I was born in Pennsylvania where I lived for 33 yrs. and then moved to New Jersey where we lived for 34 yrs, and then moved to Delaware where we now live. I am the only person of my [...]

Read full story

Jul 2012: Reina's Story

My name is Reina and I am 28 years old, living in New Jersey. I’ll begin by saying that for the longest time I thought my family and I were alone in this struggle until I came across the HAE web page. HAE is a common ailment in my family, stemming from my mother’s side [...]

Read full story

Jun 2012: Laura's Story

My name is Laura. I am 53 years old and I live in Florida. Like many HAE patients I suffered for a number of years before I finally received a diagnosis. My journey with this disease began in the 1980’s in Louisiana. For no known reason, my face and tongue began to swell. My family [...]

Read full story

May 2012: Lori's Story

My name is Lori. I am 41 and I was finally diagnosed with HAE about two years ago. My symptoms started around age 14 with stomach swelling, vomiting and diarrhea. Triggers at that time seemed to be stress. I’ve missed several days of school and work over the last 27 years and I’ve had multiple [...]

Read full story

Apr 2012: Terri's Story

My name is Terri and thanks to a Fairfax Hospital ER doctor, I discovered I had HAE as a teenager, thirty years ago. He had worked with Dr. Frank at NIH and thought I might have this rare disease. All my life I dreamed of being a mother. And even after I was diagnosed, I [...]

Read full story

Browse Archives: 1 2 3 4 5 6 >