Patient Stories Archive

Apr 2013: Hope's Story

My name is Hope and I am 55 years old. I live in a small town in Utah. I was diagnosed with HAE in 2010. My HAE story begins with my first pregnancy at the age of 34. Before that time I had no noticeable symptoms, except a severe allergy to bee stings. Just a [...]

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Feb 2013: Angela's Story

My name is Angela, I am 32 years old. Above is a picture of my dad that he took himself about 4 hours before an HAE attack (brought on by an abscessed tooth and a sinus infection) killed him. His throat swelled shut standing in his front yard. This wasn’t the first facial swelling. Even [...]

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Jan 2013: Keri's Story

My name is Keri. I currently reside in the suburbs of Washington, D.C., where I am a stay at home mom for my 3 children. I am 46 years old and have suffered with HAE attacks since childhood, but was not officially diagnosed until shortly after turning 40. My grandfather had HAE, my mother has [...]

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Dec 2012: Natascha's Story

Hello my name is Natasha. I am 25 years old and live in NC. I am a stay at home mother and currently studying for my B.A in Sociology online. I would consider myself a healthy person aside from the fact that a few times out of the month I had swelling attacks. This is [...]

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Nov 2012: Bobbi's Story

Hello, my name is Bobbi. I am a mother and wife living with HAE. I have two beautiful daughters who have HAE, too. I am 40 years old and was diagnosed over 20 years ago. At that time not much was available especially to women of childbearing age. During my childhood I frequently had stomach [...]

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Oct 2012: Jordan's Story

My name is Jordan and I am fixing to be 16 years old. I just got diagnosed with HAE in January 2012, but I assume I had it for about a year. I have played sports my whole life. I am very athletic. Last Fall, I took a hard hit on the stomach while playing [...]

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