Fundraising Guidelines

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We gratefully welcome all those who wish to organize charitable events to raise funds and awareness on behalf of the US Hereditary Angioedema Association (HAEA) – especially in conjunction with hae day :-) 2015. Please review these guidelines if you are interested in hosting a special event or doing any level of fundraising to benefit the HAEA.

It is our desire to support, not limit, your fundraiser. Please use this information simply as a tool that leads you to a successful and rewarding experience. If you have questions or need more guidance, please email

Finances
The total cost to produce your fundraiser should not exceed the amount generated from the event. If event expenses are greater than the total collected, it will be the event organizer’s responsibility to cover that additional expense. No volunteer may take a commission for holding an event.

Potential donors should be informed that 100% of proceeds from your fundraiser will be donated to the US HAEA. The event organizer is responsible for recording revenues and expenses. Please return your documentation along with all funds collected by mail with tracking to the Association’s business address :

US HAEA
PO BOX 2087
Spring, TX 77383

NOTE: All proceeds are to be delivered to the HAEA within 30 days following the date of your event.

Sponsorships
The HAEA should be informed, in advance, of any companies or corporations you wish to approach for contributions for your event and what you are seeking in support. . A sample sponsor letter for you to use can be found here

Receipting and Tax-Deductibility of Charitable Donations to 501(C)(3) Organizations
All donations or event registration fees are accepted by checks made payable directly to the Hereditary Angioedema Association or HAEA.

Donation of Services & Products
If goods and/or services are received as a charitable donation (i.e., auction items, tokens of appreciation, giveaways, beverages, etc.), the fair market value of these goods and/or services must be provided in writing by the donor to the event organizer to be included in the documentation to be sent to the HAEA after the event..

Receipts for Charitable Donations
In accordance with IRS regulations, all donations received by the US Hereditary Angioedema Association will be recognized with an official receipt for tax purposes. Only the individual, corporation, foundation, etc. identified on the check will be eligible for tax benefits due them for their donation. The HAEA will make every effort to provide receipts to all donors who can be matched to their donation.

Donors contributing cash should be made aware that their gift may not be able to be acknowledged as a tax-deductible donation to the HAEA. If cash donations are deposited to a separate account by the event organizer and subsequently donated in a single check to the HAEA, individuals or organizations who donated cash will NOT receive a tax receipt unless the event organizer provides the information below to the HAEA:

  • Donor’s complete name and address
  • Date and amount of the contribution
  • Whether the contribution was cash, in-kind services, or goods
  • A description of any donated goods or services and a good faith estimate of their fair market value

The event organizer must also supply this information for donors of goods, services or in-kind donations who wish to receive a tax receipt.

Support from the US HAEA
The HAEA wants to help you make your hae day :-) a success! Please contact Patient Services Team member Jenny Barnes for assistance at

Also your event will be posted on www.haea.org and may also be included on the hae international website: www.haeday.org.

PLEASE NOTE: The HAEA and hae day logos are trademarked – unauthorized use or alteration of these images may result in legal action

Follow Up
After your fundraising event, please let us hear from you! We would love to hear what worked well, or not so well, so that we can continue to improve our fundraisers’ experience. And THANK YOU for taking the time and making the effort to hold a charitable event on behalf of the US HAEA and hae day :-)!