For urgent assistance (800) 549-3547
We gratefully welcome all those who wish to organize charitable events to raise funds and awareness on behalf of the US Hereditary Angioedema Association (HAEA) – especially in conjunction with HAE Day :-) 2014. Please review these guidelines if you are interested in hosting a special event or doing any level of fundraising to benefit the HAEA.
It is our desire to support, not limit, your fundraiser. Please use this information simply as a tool that leads you to a successful and rewarding experience. If you have questions or need more guidance, please email
The total cost to produce your fundraiser should not exceed the amount generated from the event. If event expenses are greater than the total collected, it will be the event organizer’s responsibility to cover that additional expense. No volunteer may take a commission for holding an event.
Potential donors should be informed that 100% of proceeds from your fundraiser will be donated to the US HAEA. The event organizer is responsible for accounting documentation of revenues and expenses. [Event organizers should submit a Fundraiser Financial Report.] Please complete and return your Report along with all funds collected by certified mail to the Association’s business address :
Seven Waterfront Plaza
500 Ala Moana Blvd., Suite 400
Honolulu, HI 96813
NOTE: All proceeds must be delivered to the HAEA no later than 21 days following the date of your event.
The HAEA should be informed, in advance, of any companies or corporations you wish to approach for underwriting or for large contributions for your event and what you are seeking in support. . A sample sponsor letter for you to use can be found here
Receipting and Tax-Deductibility of Charitable Donations to 501(C)(3) Organizations
All donations or event registration fees are accepted by checks made payable directly to the Hereditary Angioedema Association or HAEA.
Donation of Services & Products
If goods and/or services are received as a charitable donation (i.e., auction items, tokens of appreciation, giveaways, meals, beverages, etc.), the fair market value of these goods and/or services must be provided in writing by the donor to the event organizer to be included in their Fundraiser Financial Report.
Donated Services & Products
The value of goods and/or services donated will be deducted from the total collected to determine the tax-deductible portion of the donation, (that means, if the event fee is $100, but $50 is paid for meal costs to the hosting facility, only $50 remains as the tax deductible donation to the HAEA).
Receipts for Charitable Donations
In accordance with IRS regulations, all donations of $250 or more received by the US Hereditary Angioedema Association will be recognized with an official receipt for tax purposes outlining the tax-deductible portion of that donation. The name appearing on check(s) received by the HAEA will be used for receipting purposes. Only the individual, corporation, foundation, etc. identified on the check will be eligible for tax benefits due them for their donation. The HAEA will make every effort to provide receipts to all donors who can be matched to their donation.
Donors contributing cash should be made aware that their gift may not be able to be acknowledged as a tax-deductible donation to the HAEA. If cash donations are deposited to a separate account by the event organizer and subsequently donated in a single check to the HAEA, individuals or organizations who donated cash will NOT receive a tax receipt unless the event organizer provides the information below to the HAEA:
The event organizer must also supply this information for donors of goods, services or in-kind donations who wish to receive a tax receipt.
Support from the US HAEA
The HAEA can offer general guidance on event or project planning along with tips for your specific type of event, financial documentation procedures, as well as coordinate to have materials provided for your event. . Please contact Patient Services Team member Jenny Barnes for assistance at
ONLY brochures and other promotional supplies (magnets, notepads, etc.) provided by the HAEA may be distributed or sold at your event.
PLEASE NOTE: The HAEA and hae day logos are trademarked – unauthorized use or alteration of these images may result in legal action
After your fundraising event, please let us hear from you! We would love to hear what worked well, or not so well, so that we can continue to improve our HAE fundraisers. And THANK YOU for taking the time and making the effort to hold a charitable event on behalf of the US HAEA and hae day :-)!