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HAE Day
HAE Day :-), May 16, 2014, is coming fast!

HAE Day :-) is a global event to raise awareness of Hereditary Angioedema among the general public and the medical community.

Below is our already growing list of events for Hae Day :-) 2014 as well as events for which the HAEA received official Event Organizer Forms in 2014. Take a look! :-)

Thank you to everyone for their time and energy, their creativity, their willingness to organize and hold an HAE Day :-) event. We know there are many others who have taken educational materials into their local ER, had educational meetings with local physicians and nurses and provided television or print interviews. A BIG thank you to you, too!

If you are interested working an event for HAE Day :-) 2014, please email haeday@haea.org.

May 16, 2014 will be here soon – start planning your event today! :-)

Together we can raise HAE awareness in the US and around the world! :-)

HAE Day :-) 2014 Awareness and Fundraiser Events

  • Shark Fest 2014-Take A Bite Out of HAE One Stroke At A Time
    September 20, 2014 – 9:00am – Boston Harbor
    Michael Ardito & Luke Tanner (9th graders)  will swim across the Boston Harbor to raise HAE awareness and fundraise.
    For more information, please contact harringtonnicole1@gmail.com or go to https://fundrazr.com/campaigns/dqfd9
  • Jenny Barnes-Polar Challenge in Memory of Her Son, Jim
    July 21, 2014 – Pendleton NC
    Donations accepted online – when Jenny reaches her goal, she will take a Polar Plunge. For more information, please contact jennybarnes@haea.org or see:
    https://www.firstgiving.com/fundraiser/JennyBarnes/jenny-barnes-polar-challenge-memory-of-jim
  • Fun Day at an Angels Baseball Game
    June 8, 2014 – Angels Stadium
    The game is at 12:35pm at Angel stadium and the HAEA group name will be projected on the score board!
    For more information and to RSVP for this event (ASAP -it is only a week away!), please contact Tad Rockwell at tadrockwell@gmail.com
  • Shop with Pampered Chef to benefit the US HAEA
    05/27/2014-06/26/2014-Online shopping site
    Pampered Chef is donating a percentage of every purchase to HAEA and raising HAE awareness in the local community. For more information, contact Cristina Gwynn at thegwynns@hotmail.com
  • Michigan House Resolution 365 (2014)
    May 14, 2014 – Michigan State Legislature
    Sponsored by State Rep .Jim Townsend. Thanks to Alex Fike for facilitating this Resolution for a third year – alex.fike@gmail.com
    http://www.legislature.mi.gov/documents/2013-2014/resolutionintroduced/House/pdf/2014-HIR-0365.pdf
  • Haitian HAE Awareness Days
    July 28th – July 30th – Port-au-Prince & Fermanthe
    Educate, inform, support hospital personnel about signs and symptoms of HAE. Also meet with Haitian Minister of Health about the large population of HAE patients there. For more information email: nursetroyce@yahoo.com
  • Angioedema Center Tour Contest
    Entries must be submitted before June 10, 2014 – online
    Provide a one word and one photo illustration of “What does having the US HAEA Angioedema Center mean to the HAE community?”
    SALIX Pharmaceuticals
    For more information, please go to www.haeanswers.com
  • Scoreboard at Yankee Stadium – hae day :-) Awareness Message
    May 16, 2014 – Yankee Stadium , Bronx, NY
    5th Inning message to read “TODAY MAY 16th IS HEREDITARY ANGIOEDEMA (HAE) DAY !!! GO TO WWW.HAEA.ORG FOR MORE INFORMATION”
    For more information, please contact Tricia Mullins at ">triciamullins1216@yahoo.com
  • Wear Jeans for Rare Genes Day
    May 16, 2014 – Luling, LA
    Students will pay $1.00 to wear jeans to school to promote HAE awareness. For more information, please contact Mary Dalgo : mary2charlie00@yahoo.com
    or visit
    http://www.firstgiving.com/fundraiser/MaryDalgo/wear-jeans-for-rare-genes
  • HAE Awareness Day Lake Walk
    May 16, 2014- Amherst NY
    Employees of TSG will raise money for the HAEA through sponsorship to walk around Lake Audubon. Employees will be given the opportunity to “dress down” Monday-Thursday by donating $1.00 per day
  • Mural Project – hae day :-) Awareness
    May 16, 2014 – San Diego, CA – The Embarcadero
    Chicago, IL – Navy Pier
    Washington, DC – Union Station
    Media interviews, dissemination of HAE info., and a large chalk work of art at the site featuring Life with HAE
    SHIRE Pharmaceuticals, for more information, please contact ">info@haea.org“>info@haea.org
  • Shop with Modere.com to Benefit the US HAEA
    May 16, 2013 – Modere.com – online shopping site
    Donating a percentage of every purchase to HAEA and raising HAE awareness in the local community.
    For more information, please contact Danielle Acordagoitia and Pat Petrini at sweetlittlesunshine@gmail.com
  • Applebees Dining to Donate for HAE Awareness and to Benefit the HAEA
    May 15, 2014 – 1000 West Esplanada Avenue Kenner, LA
    An opportunity to raise awareness about HAE and raise funds for research while enjoying a night out for dinner.
    For more information, please contact: mary2charlie00@yahoo.com
  • Chili’s Give Back Night for HAE Awareness and to Benefit the HAEA
    May 14, 2014 – 114 Bluebird Lane, Millville, NJ
    An opportunity to raise awareness about HAE and raise funds for research while enjoying a night out for dinner.    For more information, please contact Nikia Davis at  nianoah45@gmail.com
  • Health care providers (MD’s & RN’s) Annual Awareness Fair
    May 13, 2014-9am-3pm – Clermont FL
    Information on HAE exhibited/presented to raise awareness in the local medical community. This event is not open to the general public. For more information email: nursetroyce@yahoo.com
  • 1st Annual “Show Your Swell” 5K to Benefit the HAEA
    May 11, 2014 – Onondaga Lake Park, Liverpool, NY
    A fundraiser to support HAE research and remember Thomas Koeppe who passed away from HAE. For more information, please contact Chris Koeppe at ShowYourSwell5K@yahoo.com
    To sign up visit https://runsignup.com/Race/NY/Liverpool/ShowYourSwell5K
  • HAE Walk for Awareness and to Benefit the HAEA
    May 10, 2014 – Colusa, CA
    A walk to raise awareness within our friends and community about HAE and raise funds for research. For more information, please contact Crystal Heidrick at crystalheidrick@hotmail.com or visit https://www.firstgiving.com/fundraiser/crystal-2/hae-walk-for-awareness-
  • Support Ava’s Run Towards A Cure
    Sunday, May 4th, 2014- Naperville, IL
    Ava will be holding a kid’s race to raise funds to benefit the HAEA.
    For more information, please contact Sherry Porter at sherryporter@haea.org or visit http://www.firstgiving.com/fundraiser/SherryPorter/support-avas-run-towards-a-cure
  • 3rd Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA
    May 3, 2014 – Heritage Park , Cullman, AL
    A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12. For more information, please contact Lora Moore at Lyndonsmemorialwalk4HAE@yahoo.com or visit her FirstGiving page at:
    http://www.firstgiving.com/fundraiser/lyndon/3rdannuallyndonbrookestidhammemorialwalktobenefitt
  • Cincinnati Reds Opening Day Parade
    March 31, 2014 – Cincinnati, OH
    Increasing awareness through HAE Day :-) banner on parade fire truck. For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com.
  • 2014 Upper East Tennessee Science Fair
    March 22, 2014 – Culp Center, ETSU, Johnson City TN
    Emma’s science fair project on the Effect of HAE on her tongue will be displayed and judged. For more information, please contact Jennifer Holtsclaw at holtsclaw495@gmail.com or visit http://www.firstgiving.com/fundraiser/JenniferHoltsclaw/emmas-2014-upper-east-tennessee-science-fair

HAE Day :-) 2013 Awareness and Fundraiser Events

  • BBQ Chicken Dinner
    May 19, 2013 – Corydon, IN – Hayswood Park
    50 dinners prepared and sold with the proceeds going to support the US HAEA. For more information, please contact Christie Hardin at christie2575@msn.com
  • Dinner to benefit the US HAEA
    May 16, 2013 – Aliso Viejo, CA
    6pm intimate dinner at Cosmo’s to raise funds and awareness
    For more information, please contact Wendy Rockwell at wendygracerockwell@gmail.com
  • HAEA Patient Services Team – Challenge Shout Out
    Now through May 16, 2013
    Members of the HAEA Patient Services Team have challenged each other to find new HAE-affected family members within their regions – you can help by contacting all in your family who are not yet HAEA members to sign up. When you help a relative sign up as a new member with the HAEA, both of you receive a free gift!
    Please contact your Patient Services Team Member for details on how you can help with their Challenge Shout Out. A fun hae day :-) event to help our HAE community grow!
    Patient Services Team Members are listed here – http://www.haea.org/contact/patient-services/
  • 2nd Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA
    May 16, 2013 – Heritage Park , Cullman, AL
    A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12
    For more information, please contact Lora Moore at avasgunit@aol.com or go to https://www.firstgiving.com/USHAEA/Stidham
  • Scoreboard at Yankee Stadium – hae day :-) Awareness Message
    May 16, 2013 – Yankee Stadium , Bronx, NY
    5th Inning message to read “TODAY MAY 16th IS HEREDITARY ANGIOEDEMA (HAE) DAY !!! GO TO WWW.HAEA.ORG FOR MORE INFORMATION”

    For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com

  • “Wear Your Jeans to Work for HAE Day :-)
    May 16, 2013 – CNY Medical Center Syracuse, NY
    Increasing awareness throughout the workplace and via media, as well as fundraising to support HAEA. For more information, please contact Holly Koeppe at hkoeppe@aol.com
  • HAE, Through My Eyes
    May 16, 2013 – Albany, NY
    Michael Harrington will distribute HAE bracelets and educational materials to his schoolmates
    For more information AND TO READ MICHAEL’S HAE STORY , please contact Nicole Harrington at harringtonnicole1@gmail.com
  • Jeans Day for HAE Day
    May 16, 2013 – Memphis, TN
    Employees and staff of Christ Community Health Services wear jeans (donation) to honor HAE Global Awareness Day
    For more information, please contact Pamela Liggins at ">pamela.liggins@christchs.org
  • Brenda’s Awareness Day for HAE
    May 16, 2013 – St. Louis, MO
    Raising HAE awareness among members of the Trinity Methodist Church
    For more information, please contact Brenda Minnick at Brenda@haea.org
  • Soma Intimates
    May 16, 2013 – Albuquerque,NM
    Donating 10% of every purchase to HAEA and raising HAE awareness in the local community.
    For more information, please contact Victoria Charlton at vcharlton@comcast.net
  • HAE Awareness for Healthcare Professionals
    May 16, 2013 – Greater Cincinnati, OH area
    Information provided to offices, ERs, fire stations, etc.
    For more information, please contact Missy Mallory at mkmallory3@gmail.com
  • Michigan House Resolution 146 (2013)
    May 16, 2013 – Michigan State Legislature
    Sponsored by State Rep .Jim Townsend.  Thanks to Alex Fike for facilitatingthis Resolution – alex.fike@gmail.com
    http://www.legislature.mi.gov/documents/2013-2014/resolutionadopted/House/pdf/2013-HAR-0146.pdf
  • Walk a Block for HAE
    May 11, 2013 – Pleasant St. YMCA, Attleboro, MA
    A fundraiser to support HAE research – sponsor each 1/10th of a mile with a donation of your choice.
    For more information, please contact Janet Long at janetlong@haea.org or go to https://www.firstgiving.com/USHAEA/janet-long
  • Interview with local ABC Affiliate for HAE Awareness
    May 6, 2013 – St. Joseph, MO (also to be aired on May16)
    Media event to provide education and to raise awareness
    For more information, please contact Chuck and Bobbi Sturges at roadcshd@yahoo.com
  • Donation of sales received from Pink Papaya
    May 4-May 6, 2013 – www.pinkpapaya.com/MSDANIELLE/
    Danielle’s donation will go to support financial assistance for HAE patients diagnosis
    For more information, please contact Danielle at pinkpapayasunshine@gmail.com
  • Annual Disease/Health Awareness Day – South Lake Chamber Center
    April 23, 2013 – Clermont, FL
    Health fair to educate community physicians and nurses. For more information, please contact Troyce Venturella at nursetroyce@yahoo.com
  • Cincinnati Reds Opening Day Parade
    April 1, 2013 – Cincinnati, OH
    Increasing awareness through hae day :-) banners on 2 parade fire trucks. For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com
  • One Year Ashley Crow Memorial HAE Awareness Event to Benefit the HAEA
    March 23, 2013 – Heritage Park , Cullman, AL
    An awareness event to support HAE research and remember Ashley, who passed away from HAE –balloons will be released with HAEA web site information and then it will be posted where they were found around the country. For more information, please contact Johna Licht at thesitter8@hotmail.com
  • Yorkville High School Katwalk for Kelsie
    Jan. 18, 2013 – Yorkville, IL
    A fundraiser to support HAE research and support a Yorkville High School student who has HAE. For more info, contact LRichmond@y115.org

HAE Day :-) 2012 Awareness and Fundraiser Events

  • Michigan House Resolution HCR 268
    Passed May 16, 2012
    Alex.fike@gmail.com
  • Cincinnati Reds Opening Day Parade truck
    April 5, 2012 – Cincinnati, OH
    Banners announced HAE Day :-) to the parade crowd, for more info, contact mike.mallory3@gmail.com
  • Nursing Students and Medical Staff Education and Awareness
    April 13, 2012 – Honolulu, HI.
    Putting a face to a rare disease for more accurate and quicker diagnosis and treatment. For more info, contact donna-davis@haea.org and Chaitanya Nichols
  • Swell Card Tournament
    May 5, 2012 – Winston-Salem, NC
    Prizes and just lots of fun for a low, low admission price. For more info, contact thisisrocky@myway.com
  • Bowl 4 HAE
    May 6, 2012 – Kearney, NE
    Family bowling fun! For more info, contact cjfuqua@hotmail.com
  • HAE Walk-A-Thon
    May 12, 2012
    Waterfront Park in Clermont, FL
    Laps around the park, information booth, small donation. For more info, contact nursetroyce@yahoo.com
  • Swell Treats & Bake Sale
    May 16, 2012 – Lockhart, TX Walmart
    HAE awareness and delicious baked goods. For more info, contact gandniss@yahoo.com
  • Scoreboard message – Angels baseball game
    May 16, 2012 7:05pm
    “Congratulations 1st National HAE Day :-)
    Thank you, Wendy!
  • Lyndon Brooke Stidham Memorial Walk for HAE
    May 16, 2012 – Heritage Park – Cullman, AL
    Relay event, prizes, small registration fee. For more info, contact hillaryfaye05@yahoo.com
  • HAE Team Hawaii in the 32nd Annual Tinman Triathlon
    July 29, 2012 – Honolulu, HI
    Swim-Bike-Run to raise funds for HAE research. For more info, contact donna-davis@haea.org
  • Wine and Dinner for HAE
    May 16, 2012 – Amerigo’s Restaurant in the West End, Nashville, TN
    For reservations, please call Ali Gensert – 615-298-2986

Swell Treats & Bake Sale
May 16, 2012

Lockhart, TX Walmart

HAE awareness and delicious baked goods. For more info, contact gandniss@yahoo.com

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