hae day :-) Events

HAE Day :-) (May 16, 2013) is coming fast!

HAE Day :-) is a global event to raise awareness of Hereditary Angioedema among the general public and the medical community.

Below is our already growing list of events for Hae Day :-) 2013 as well as events for which the HAEA received official Event Organizer Forms in 2012. Take a look! :-)

Thank you to everyone for their time and energy, their creativity, their willingness to organize and hold an HAE Day :-) event. We know there are many others who have taken ER posters into their local ER, had educational meetings with local physicians and nurses and provided television or print interviews. A BIG thank you to you, too!

If you are interested working an event for HAE Day :-) 2013, please email haeday@haea.org.

May 16, 2013 will be here soon – start planning your event today! :-)

Together we can raise HAE awareness in the US and around the world! :-)

HAE Day :-) 2013 Awareness and Fundraiser Events

BBQ Chicken Dinner
May 19, 2013 – Corydon, IN – Hayswood Park
50 dinners prepared and sold with the proceeds going to support the US HAEA. For more information, please contact Christie Hardin at christie2575@msn.com
Dinner to benefit the US HAEA
May 16, 2013 – Aliso Viejo, CA
6pm intimate dinner at Cosmo’s to raise funds and awareness
For more information, please contact Wendy Rockwell at wendygracerockwell@gmail.com
HAEA Patient Services Team – Challenge Shout Out
Now through May 16, 2013
Members of the HAEA Patient Services Team have challenged each other to find new HAE-affected family members within their regions – you can help by contacting all in your family who are not yet HAEA members to sign up. When you help a relative sign up as a new member with the HAEA, both of you receive a free gift!
Please contact your Patient Services Team Member for details on how you can help with their Challenge Shout Out. A fun hae day :-) event to help our HAE community grow!
Patient Services Team Members are listed here – http://www.haea.org/contact/patient-services/
2nd Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA
May 16, 2013 – Heritage Park , Cullman, AL
A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12
For more information, please contact Lora Moore at avasgunit@aol.com or go to https://www.firstgiving.com/USHAEA/Stidham
Scoreboard at Yankee Stadium – hae day :-) Awareness Message
May 16, 2013 – Yankee Stadium , Bronx, NY
5^th Inning message to read “TODAY MAY 16^th IS HEREDITARY ANGIOEDEMA (HAE) DAY !!! GO TO WWW.HAEA.ORG FOR MORE INFORMATION”

For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com
“Wear Your Jeans to Work for HAE Day :-)“
May 16, 2013 – CNY Medical Center Syracuse, NY
Increasing awareness throughout the workplace and via media, as well as fundraising to support HAEA. For more information, please contact Holly Koeppe at hkoeppe@aol.com
HAE, Through My Eyes
May 16, 2013 – Albany, NY
Michael Harrington will distribute HAE bracelets and educational materials to his schoolmates
For more information AND TO READ MICHAEL’S HAE STORY , please contact Nicole Harrington at harringtonnicole1@gmail.com
Jeans Day for HAE Day
May 16, 2013 – Memphis, TN
Employees and staff of Christ Community Health Services wear jeans (donation) to honor HAE Global Awareness Day
For more information, please contact Pamela Liggins at pamela.liggins@christchs.org
Brenda’s Awareness Day for HAE
May 16, 2013 – St. Louis, MO
Raising HAE awareness among members of the Trinity Methodist Church
For more information, please contact Brenda Minnick at Brenda@haea.org
Soma Intimates
May 16, 2013 – Albuquerque,NM
Donating 10% of every purchase to HAEA and raising HAE awareness in the local community.
For more information, please contact Victoria Charlton at vcharlton@comcast.net
HAE Awareness for Healthcare Professionals
May 16, 2013 – Greater Cincinnati, OH area
Information provided to offices, ERs, fire stations, etc.
For more information, please contact Missy Mallory at mkmallory3@gmail.com
Michigan House Resolution 146 (2013)
May 16, 2013 – Michigan State Legislature
Sponsored by State Rep .Jim Townsend. Thanks to Alex Fike for facilitatingthis Resolution – alex.fike@gmail.com
http://www.legislature.mi.gov/documents/2013-2014/resolutionadopted/House/pdf/2013-HAR-0146.pdf
Walk a Block for HAE
May 11, 2013 – Pleasant St. YMCA, Attleboro, MA
A fundraiser to support HAE research – sponsor each 1/10th of a mile with a donation of your choice.
For more information, please contact Janet Long at janetlong@haea.org or go to https://www.firstgiving.com/USHAEA/janet-long
Interview with local ABC Affiliate for HAE Awareness
May 6, 2013 – St. Joseph, MO (also to be aired on May16)
Media event to provide education and to raise awareness
For more information, please contact Chuck and Bobbi Sturges at roadcshd@yahoo.com
Donation of sales received from Pink Papaya
May 4-May 6, 2013 – www.pinkpapaya.com/MSDANIELLE/
Danielle’s donation will go to support financial assistance for HAE patients diagnosis
For more information, please contact Danielle at pinkpapayasunshine@gmail.com
Annual Disease/Health Awareness Day – South Lake Chamber Center
April 23, 2013 – Clermont, FL
Health fair to educate community physicians and nurses. For more information, please contact Troyce Venturella at nursetroyce@yahoo.com
Cincinnati Reds Opening Day Parade
April 1, 2013 – Cincinnati, OH
Increasing awareness through hae day :-) banners on 2 parade fire trucks. For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com
One Year Ashley Crow Memorial HAE Awareness Event to Benefit the HAEA
March 23, 2013 – Heritage Park , Cullman, AL
An awareness event to support HAE research and remember Ashley, who passed away from HAE –balloons will be released with HAEA web site information and then it will be posted where they were found around the country. For more information, please contact Johna Licht at thesitter8@hotmail.com
Yorkville High School Katwalk for Kelsie
Jan. 18, 2013 – Yorkville, IL
A fundraiser to support HAE research and support a Yorkville High School student who has HAE. For more info, contact LRichmond@y115.org

HAE Day :-) 2012 Awareness and Fundraiser Events

Michigan House Resolution HCR 268
Passed May 16, 2012
Alex.fike@gmail.com
Cincinnati Reds Opening Day Parade truck
April 5, 2012 – Cincinnati, OH
Banners announced HAE Day :-) to the parade crowd, for more info, contact mike.mallory3@gmail.com
Nursing Students and Medical Staff Education and Awareness
April 13, 2012 – Honolulu, HI.
Putting a face to a rare disease for more accurate and quicker diagnosis and treatment. For more info, contact donna-davis@haea.org and Chaitanya Nichols
Swell Card Tournament
May 5, 2012 – Winston-Salem, NC
Prizes and just lots of fun for a low, low admission price. For more info, contact thisisrocky@myway.com
Bowl 4 HAE
May 6, 2012 – Kearney, NE
Family bowling fun! For more info, contact cjfuqua@hotmail.com
HAE Walk-A-Thon
May 12, 2012
Waterfront Park in Clermont, FL
Laps around the park, information booth, small donation. For more info, contact nursetroyce@yahoo.com
Swell Treats & Bake Sale
May 16, 2012 – Lockhart, TX Walmart
HAE awareness and delicious baked goods. For more info, contact gandniss@yahoo.com
Scoreboard message – Angels baseball game
May 16, 2012 7:05pm
“Congratulations 1^st National HAE Day :-) “
Thank you, Wendy!
Lyndon Brooke Stidham Memorial Walk for HAE
May 16, 2012 – Heritage Park – Cullman, AL
Relay event, prizes, small registration fee. For more info, contact hillaryfaye05@yahoo.com
HAE Team Hawaii in the 32^nd Annual Tinman Triathlon
July 29, 2012 – Honolulu, HI
Swim-Bike-Run to raise funds for HAE research. For more info, contact donna-davis@haea.org
Wine and Dinner for HAE
May 16, 2012 – Amerigo’s Restaurant in the West End, Nashville, TN
For reservations, please call Ali Gensert – 615-298-2986