About hae day :-)
What is it?
May 16, 2012, was the first hae day :-) – a global event to raise awareness of Hereditary Angioedema among the general public and the medical community.
hae day :-) has been initiated by HAEi, the International Patient Organization for C1 Inhibitor Deficiency, along with the support of its national member organizations, including the US HAEA! For more information about HAEi, please visit http://www.haei.org.
Your participation and support will make hae day :-) a great success!
hae day :-) aims to:
- Support better care and an earlier and more accurate diagnosis for HAE patients
- Engage and educate the general public and the medical community
- Raise funds for further national and international HAE initiatives
- Strengthen the voice of patients, uniting HAE patient organizations globally
The US HAEA hopes hae day :-) will increase awareness of HAE in the United States.We also hope to raise funds for the HAEA to continue our vital work supporting HAE patients.
How can I help?
There are several ways you can participate and help make hae day :-) – successful.
- Raise money
One of our biggest tasks as an organization is to find a cure for HAE. We need to raise money to fund research projects and you can definitely help! So hold a bake sale, have your kids set up a car wash, organize a race… we’re quite sure you can find some creative way to help us raise money. Please click here to get an HAEA fundraising project started.
Questions? Please call your HAEA Patient Services staff member or email
- Raise awareness
Educate everyone around you about HAE. Contact your local media outlets and tell them your story. Contact your local ERs and medical service providers and provide them with information about HAE. We have put together a collection of materials you can use to educate those around you. We have media interview guidelines, informational brochures, and even a full-color HAE information poster. Click here for our ‘hae day :-) Tool Kit’ to get you started.
- Raise enthusiasm
For another fun way to raise awareness of HAE, visit the hae day :-) website and “Cover the World with Your Smiles”. You can upload your smile and a greeting on http://www.haeday.org/smile – your smile links to Facebook and Twitter – and you can also share your smile (together with a message) on your own Facebook page wall.
Ask your friends to also send a smile. Who knows? Maybe through your Facebook network you will help that undiagnosed person with HAE. Spread the word and make some noise about http://www.haeday.org !