In 2013, YOU, our HAE community, pitched in for more than 22 separate hae day :-) awareness events and fundraisers! Our patient community rallied to support our virtual fundraiser for the HAEA Benevolence Fund – the TransPac Sailing Race.
In 2014, YOU, our HAE community, created more than 30 separate hae day :-) awareness events and fundraisers! Our patient community rallied to support our virtual fundraiser for the HAEA Benevolence Fund – the Kili Care Climb.
As we look to May 16, 2015, it is never too early to start planning your own hae day :-) educational event or fundraiser! You can read about and be inspired by the events held in previous years and see the already growing list of 2015 hae day :-) events here.
Let’s lead the way again in 2015
How can I help?
There are several ways you can participate and help make hae day :-) a national success!
One of our biggest tasks as an organization is to find a cure for HAE. Money is needed to fund research projects and you can definitely help!
Hold a bake sale, have your kids set up a car wash, organize a race… there are so many creative ways (both big and small) to help us raise money. To get started on your hae day :-) fundraiser, please click here.
Educate everyone around you about HAE. Contact your local media outlets and tell them your story. Contact your local ERs and medical service providers and provide them with information about HAE. We have put together a collection of materials you can use to educate those around you. Click here for the hae day :-)Tool Kit to get you started.
For another fun way to raise awareness of HAE, visit the international http://www.haeday.org/smile website www.haeday.org and “Cover the World with Your Smiles”. You can upload your smile and a greeting on http://www.haeday.org/smile – your smile links to Facebook and Twitter – and you can also share your smile (together with a message) on your own Facebook page wall.Ask your friends to also send a smile. Who knows? Maybe through your Facebook network you will help that undiagnosed person with HAE.
Still have hae day :-) questions?
Please call your HAEA Patient Services Team member or email
2014 Core Program Support Provided by:
The US Hereditary Angioedema Association
Seven Waterfront Plaza
500 Ala Moana Blvd., Suite 400
Honolulu, HI 96813