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• Join the US HAEA
• Regional Patient Meeting Registration
  • US HAEA Regional Patient Meeting Agenda
• Support HAE Research
• Community Support Luncheons
• US HAEA Teen Facebook Group
• US HAEA Scientific Registry
  • Enroll in the Registry
  • Scientific Registry FAQ
• Image Repository
• US HAEA Facebook Group
• DiscussHAE
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• Ways to Give
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US HAEA Teen Facebook Group

We have created a Facebook page for our US HAEA teens in response to requests for a secure place for social networking opportunities. We hope you will make use of this page to share your HAE stories with other teens. Please note that you must be between the ages of 13-18 to join this page. Only members of the US HAEA may be confirmed as Facebook friends – if you are not yet a US HAEA member, please click here to sign up now!

It is important for you to remember this is a public forum — it is not HIPAA compliant — and although we try our best, we cannot guarantee your privacy. Any questions regarding medical difficulties, physician referrals, medicines, etc. should be posted on our privacy-protected DiscussHAEA listserv.

Because there are numerous Facebook pages about HAE, please use the URL below to go directly to the only official US HAEA teen Facebook page:

http://www.facebook.com/groups/224568330945171/