Help us find a cure!
Learn how >
We value the struggles and triumphs of all of our members and hope you will make use of this page to share your HAE stories with others.
Members of the US HAEA may be confirmed as Facebook friends – if you are not yet a US HAEA member, please click here to sign up now!
It is important for you to remember this is a public forum — it is not HIPAA compliant — and although we try our best, we cannot guarantee your privacy. Any questions regarding medical difficulties, physician referrals, medicines, etc. should be posted on our privacy-protected DiscussHEA listserv.
Because there are numerous Facebook pages about HAE, please use the URL below to go directly to the only official US HAEA Facebook page:
(Note: For the safety of our members, the page administrator reserves the right to monitor posts and to deny access to anyone who violates commonly accepted Facebook etiquette.)
We are excited about providing this Facebook page for our HAEA community and look forward to all the great HAE connections that will be made here!