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The US HAEA’s dynamic and growing grassroots advocacy work ensures that your voice – patient, caregiver, family member – is heard.
HAEA’s advocacy and public policy program monitors and influences legislative and regulatory issues that affect everyone living with all types of Hereditary Angioedema. This advocacy work highlights HAEA’s positions on such important issues as accurate and timely disease diagnosis, access to HAE treatment, the continued development of new HAE therapies and funding for HAE scientific research.
HAEA executive staff collaborate strategically with other rare disease organizations, coalitions, and government agencies to ensure that the interests of HAEA members are seriously considered in decisions important to all of our futures. HAEA is at the tables of:
As an HAEA Advocate, you can choose from a number of volunteer activities – as many or as few as you wish!
On Your Behalf
The HAEA closely monitors all issues that may impact access to or quality of care for HAE patients. We are fortunate to have an HAEA community that is eager to share their personal HAE journeys and that is enthusiastic about making a difference for all HAE patients and their families on key legislative issues.
Your legislators will only take action if YOU ask them to. Become an HAEA advocate today!
Click here to register!