Events to Inspire for hae day :-)

hae day :-) is a global event to raise awareness of Hereditary Angioedema among the general public and the medical community.

May 16, 2017 is HAE day! – to inspire you as you create your own event, please take a look at the long list of the many events held for hae day :-).

And after you find inspiration for an event of your own for hae day :-)  2017, please email us at haeday@haea.org!

hae day :-) 2017 Awareness and Fundraiser Events

May 16, 2017 events!, please take a look at the long list HERE of the many events held for hae day :-).

hae day :-) 2016 Awareness and Fundraiser Events

May 12, 2016 – Luling, LA
Students will pay $1.00 to wear jeans to school to promote HAE awareness. For more information, please contact Mary Dalgo at mary2charlie00@yahoo.com or visit https://fundrazr.com/8183Ra?ref=ab_43frC0

3nd Annual “Show Your Swell” 5K to Benefit the HAEA

May 08, 2016 – Longbranch Park, Liverpool, NY
A fundraiser to support HAE research and honor the memory of Thomas Koeppe who passed away from HAE. For more information, please contact Chris Koeppe at ShowYourSwell5K@yahoo.com or visit https://runsignup.com/Race/NY/Liverpool/ShowYourSwell5K

Walk the Square for HAE C.A.R.E – April 30, 2016 – Colusa, CA

A walk to raise awareness within our friends and community about HAE and raise funds for research. For more information, please contact Crystal Heidrick at walkthesquare@live.com

Taste of Union – April 21, 2016, 6-8pm (EST) – Union NJ

Local Restaurants gather for this annual fundraiser featuring food and wine tasting. This Knights of Columbus fundraiser is held in honor of young HAE patient, Jack Chacon. For more information, please contact Lisa Chacon at: kjc390@verizon.net

Walk-A-Thon – March 24, 2016, 9:30am (EST) – Newfield, NJ

Students participate in a Walkathon in honor of Noah Davis, picked by his school as its annual fundraiser for a non-profit. 100% of the proceeds will be donated to the HAEA.
For more information please contact Nikia Davis nikiadavis@haea.org

Jamberry Party – March 3 – 31, 2016 – Online

Join a Jamberry Party online! A percentage of all profits will be donated to the HAEA based on sales. For more information, please contact Joann Ramos blueeyes5@gmail.com or visit https://www.facebook.com/groups/947275435327603/?pnref=story

Give Back to Fight Attacks – February 6, 2016 – Clifton, NJ

70’s throw-back fitness event and 70’s inspired workouts to raise awareness and fund raise. This event will take place place 9 am-2pm at 202 Main St.

For more information please contact asylvander21271@comcast.net or go to https://www.haea.org/donate to make a donation.

hae day :-) 2015 Awareness and Fundraiser Events

Shark Fest 2015-Take A Bite Out of HAE One Stroke At A Time

September 19, 2015 – 9:00am – Boston Harbor
Michael Ardito & Nicole Harrington will swim across the Boston Harbor to raise HAE awareness and fundraise.
For more information, please contact harringtonnicole1@gmail.com or go to https://fundrazr.com/campaigns/b11kGa/ab/43frC0

Support HAE Day 2015 along with Team HAEA

https://fundrazr.com/campaigns/1xtzf/ab/43frC0

4th Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA

May 16, 2015 – Heritage Park , Cullman, AL
A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12. For more information, please contact Lora Moore at Lyndonsmemorialwalk4HAE@yahoo.com or visit https://fundrazr.com/campaigns/fvhRf/ab/43frC0

5th Inning Dodgers Stadium Scoreboard

May 16, 2015- Dodgers Stadium, Los Angeles, California
5th Inning Scoreboard Message to read: “TODAY, MAY 16th is HEREDITARY ANGIOEDEMA (HAE) DAY!! :) GO TO WWW.HAEA.ORG TO LEARN MORE !”
For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com

Scoreboard at Petco Park – hae day :-) Awareness Message

May 14, 2015 at 7:10pm – Petco Park , San Diego, CA
Top of the 3rd inning and will continue through the bottom of the 6th. Scoreboard message to read “May 16th IS HEREDITARY ANGIOEDEMA DAY… HAE DAY!! GO TO WWW.HAEA.ORG TO LEARN MORE ABOUT THIS RARE CONDITION”
For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com

2nd Annual “Show Your Swell” 5K to Benefit the HAEA

May 10, 2015 – Longbranch Park, Liverpool, NY
A fundraiser to support HAE research and remember Thomas Koeppe who passed away from HAE. For more information, please contact Chris Koeppe at ShowYourSwell5K@yahoo.com or visit https://runsignup.com/Race/NY/Liverpool/ShowYourSwell5K

HAE Walk for Awareness and to Benefit the HAEA

May 9, 2015 – Colusa, CA
A walk to raise awareness within our friends and community about HAE and raise funds for research. For more information, please contact Crystal Heidrick at walkthesquare@live.com or visit https://fundrazr.com/campaigns/ay0Qd/ab/43frC0

Wear Jeans for Rare Genes Day

May 8, 2015 – Luling, LA
Students will pay $1.00 to wear jeans to school to promote HAE awareness. For more information, please contact Mary Dalgo at mary2charlie00@yahoo.com or visit https://fundrazr.com/campaigns/dyw32/ab/43frC0

Shop with Pampered Chef to benefit the US HAEA

May 1 – 14, 2015 – Online shopping site
Pampered Chef is donating a percentage of every purchase to HAEA and raising HAE awareness in the local community. For more information, contact Cristina Gwynn at 5gwynns98@gmail.com or go to http://www.pamperedchef.com/pws/gwynnscook

Harrison County Health Fair

April 24, 2015- 2pm-6pm Hayswood Park Corydon IN
Information booth on HAE – exhibiting to raise awareness in the local community.
For more information, please contact Christie Hardin at johnchristiehardin@gmail.com

Cincinnati Reds Opening Day Parade

April 6, 2015- Cincinnati, OH
Increasing awareness through hae day :-) banner on parade fire truck. For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com

HAE Day :-) Kids & Teen Conference

January 10, 2015 Charlotte NC
Fun and low stress event for kids and teens 6-18 on new ways to take charge of their HAE. Parent sessions offered as well. For more information, please contact Shari Starr sharilstarr@gmail.com
RSVP: jennybarnes@haea.org

Corporate Supporter Events

Shire
May 16 – 30, 2015 – Lexington, MA
Shire invites everyone to visit www.MeNotHAE.com to share a wish or message of inspiration with the HAE community. Each wish submitted online will add a leaf to the virtual HAE Wish Tree, growing a picture of hope for those living with this HAE.

Dyax
May 16, 2015 – Burlington, MA
Dyax invites the HAE community to join them by sharing their HAE stories of hope through the HAE Hope Essay Contest. Eligibility criteria, rules and further prize details can be found here: essaycontest.haehope.com Entry deadline is Sept.1, 2015 but be sure to enter today!

BioCryst Pharmaceuticals, Inc.
May 14, 2015 – Durham, NC Offices
BioCryst is holding an internal HAE awareness event, where they have a video on HAE research and development at the company and a special guest speaker. You may view the video here

CSL Behring
May 14, 2015 – King of Prussia Offices
CSL is providing the opportunity to have your voice heard and inspire others for hae day :-)
You may view and print the Raise Your Voice flyer with all the details on how to participate here

hae day :-) 2014 Awareness and Fundraiser Events

Shark Fest 2014-Take A Bite Out of HAE One Stroke At A Time

September 20, 2014 – 9:00am – Boston Harbor
Michael Ardito & Luke Tanner (9th graders) will swim across the Boston Harbor to raise HAE awareness and fundraise.
For more information, please contact harringtonnicole1@gmail.com or go to https://fundrazr.com/campaigns/dqfd9

Jenny Barnes-Polar Challenge in Memory of Her Son, Jim

July 21, 2014 – Pendleton NC
Donations accepted online – when Jenny reaches her goal, she will take a Polar Plunge. For more information, please contact jennybarnes@haea.org or see:
https://www.firstgiving.com/fundraiser/JennyBarnes/jenny-barnes-polar-challenge-memory-of-jim

Fun Day at an Angels Baseball Game

June 8, 2014 – Angels Stadium
The game is at 12:35pm at Angel stadium and the HAEA group name will be projected on the score board!
For more information and to RSVP for this event (ASAP -it is only a week away!), please contact Tad Rockwell at tadrockwell@gmail.com

Shop with Pampered Chef to benefit the US HAEA

05/27/2014-06/26/2014-Online shopping site
Pampered Chef is donating a percentage of every purchase to HAEA and raising HAE awareness in the local community. For more information, contact Cristina Gwynn at thegwynns@hotmail.com

Michigan House Resolution 365 (2014)

May 14, 2014 – Michigan State Legislature
Sponsored by State Rep .Jim Townsend. Thanks to Alex Fike for facilitating this Resolution for a third year – alex.fike@gmail.com
http://www.legislature.mi.gov/documents/2013-2014/resolutionintroduced/House/pdf/2014-HIR-0365.pdf

Haitian HAE Awareness Days

July 28th – July 30th – Port-au-Prince & Fermanthe
Educate, inform, support hospital personnel about signs and symptoms of HAE. Also meet with Haitian Minister of Health about the large population of HAE patients there. For more information email: nursetroyce@yahoo.com

Angioedema Center Tour Contest

Entries must be submitted before June 10, 2014 – online
Provide a one word and one photo illustration of “What does having the US HAEA Angioedema Center mean to the HAE community?”
SALIX Pharmaceuticals
For more information, please go to www.haeanswers.com

Scoreboard at Yankee Stadium – hae day :-) Awareness Message

May 16, 2014 – Yankee Stadium , Bronx, NY
5th Inning message to read “TODAY MAY 16th IS HEREDITARY ANGIOEDEMA (HAE) DAY !!! GO TO WWW.HAEA.ORG FOR MORE INFORMATION”
For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com

Wear Jeans for Rare Genes Day

May 16, 2014 – Luling, LA
Students will pay $1.00 to wear jeans to school to promote HAE awareness. For more information, please contact Mary Dalgo : mary2charlie00@yahoo.com
or visit
http://www.firstgiving.com/fundraiser/MaryDalgo/wear-jeans-for-rare-genes

HAE Awareness Day Lake Walk

May 16, 2014- Amherst NY
Employees of TSG will raise money for the HAEA through sponsorship to walk around Lake Audubon. Employees will be given the opportunity to “dress down” Monday-Thursday by donating $1.00 per day

Mural Project – hae day :-) Awareness

May 16, 2014 – San Diego, CA – The Embarcadero
Chicago, IL – Navy Pier
Washington, DC – Union Station
Media interviews, dissemination of HAE info., and a large chalk work of art at the site featuring Life with HAE
SHIRE Pharmaceuticals, for more information, please contact info@haea.org

Shop with Modere.com to Benefit the US HAEA

May 16, 2013 – Modere.com – online shopping site
Donating a percentage of every purchase to HAEA and raising HAE awareness in the local community.
For more information, please contact Danielle Acordagoitia and Pat Petrini at sweetlittlesunshine@gmail.com

Applebees Dining to Donate for HAE Awareness and to Benefit the HAEA

May 15, 2014 – 1000 West Esplanada Avenue Kenner, LA
An opportunity to raise awareness about HAE and raise funds for research while enjoying a night out for dinner.
For more information, please contact: mary2charlie00@yahoo.com

Chili’s Give Back Night for HAE Awareness and to Benefit the HAEA

May 14, 2014 – 114 Bluebird Lane, Millville, NJ
An opportunity to raise awareness about HAE and raise funds for research while enjoying a night out for dinner. For more information, please contact Nikia Davis at nianoah45@gmail.com

Health care providers (MD’s & RN’s) Annual Awareness Fair

May 13, 2014-9am-3pm – Clermont FL
Information on HAE exhibited/presented to raise awareness in the local medical community. This event is not open to the general public. For more information email: nursetroyce@yahoo.com

1st Annual “Show Your Swell” 5K to Benefit the HAEA

May 11, 2014 – Onondaga Lake Park, Liverpool, NY
A fundraiser to support HAE research and remember Thomas Koeppe who passed away from HAE. For more information, please contact Chris Koeppe at ShowYourSwell5K@yahoo.com
To sign up visit https://runsignup.com/Race/NY/Liverpool/ShowYourSwell5K

HAE Walk for Awareness and to Benefit the HAEA

May 10, 2014 – Colusa, CA
A walk to raise awareness within our friends and community about HAE and raise funds for research. For more information, please contact Crystal Heidrick at crystalheidrick@hotmail.com or visit https://www.firstgiving.com/fundraiser/crystal-2/hae-walk-for-awareness-

Support Ava’s Run Towards A Cure

Sunday, May 4th, 2014- Naperville, IL
Ava will be holding a kid’s race to raise funds to benefit the HAEA.
For more information, please contact Sherry Porter at sherryporter@haea.org or visit http://www.firstgiving.com/fundraiser/SherryPorter/support-avas-run-towards-a-cure

3rd Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA

May 3, 2014 – Heritage Park , Cullman, AL
A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12. For more information, please contact Lora Moore at Lyndonsmemorialwalk4HAE@yahoo.com or visit her FirstGiving page at:
http://www.firstgiving.com/fundraiser/lyndon/3rdannuallyndonbrookestidhammemorialwalktobenefitt

Cincinnati Reds Opening Day Parade

March 31, 2014 – Cincinnati, OH
Increasing awareness through HAE Day :-) banner on parade fire truck. For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com.

2014 Upper East Tennessee Science Fair

March 22, 2014 – Culp Center, ETSU, Johnson City TN
Emma’s science fair project on the Effect of HAE on her tongue will be displayed and judged. For more information, please contact Jennifer Holtsclaw at holtsclaw495@gmail.com or visit http://www.firstgiving.com/fundraiser/JenniferHoltsclaw/emmas-2014-upper-east-tennessee-science-fair

hae day :-) 2013 Awareness and Fundraiser Events

BBQ Chicken Dinner

May 19, 2013 – Corydon, IN – Hayswood Park

50 dinners prepared and sold with the proceeds going to support the US HAEA.

For more information, please contact Christie Hardin at christie2575@msn.com

 

Dinner to benefit the US HAEA

May 16, 2013 – Aliso Viejo, CA

6pm intimate dinner at Cosmo’s to raise funds and awareness

For more information, please contact Wendy Rockwell at wendygracerockwell@gmail.com

 

HAEA Patient Services Team – Challenge Shout Out

Now through May 16, 2013

Members of the HAEA Patient Services Team have challenged each other to find new HAE-affected family members within their regions – you can help by contacting all in your family who are not yet HAEA members to sign up. When you help a relative sign up as a new member with the HAEA, both of you receive a free gift!

Please contact your Patient Services Team Member for details on how you can help with their Challenge Shout Out. A fun hae day :-) event to help our HAE community grow!

 

2nd Annual Lyndon Brooke Stidham Memorial Walk to Benefit the HAEA

May 16, 2013 – Heritage Park , Cullman, AL

A fundraiser to support HAE research and remember Lyndon, who passed away from HAE at age 12

For more information, please contact Lora Moore at avasgunit@aol.com or go to https://www.firstgiving.com/USHAEA/Stidham

 

Scoreboard at Yankee Stadium – hae day :-) Awareness Message

May 16, 2013 – Yankee Stadium , Bronx, NY

5th Inning message to read “TODAY MAY 16th IS HEREDITARY ANGIOEDEMA (HAE) DAY !!! GO TO WWW.HAEA.ORG FOR MORE INFORMATION”

For more information, please contact Tricia Mullins at triciamullins1216@yahoo.com

 

“Wear Your Jeans to Work for HAE Day :-)“

May 16, 2013 – CNY Medical Center Syracuse, NY

Increasing awareness throughout the workplace and via media, as well as fundraising to support HAEA.

For more information, please contact Holly Koeppe at hkoeppe@aol.com

 

HAE, Through My Eyes

May 16, 2013 – Albany, NY

Michael Harrington will distribute HAE bracelets and educational materials to his schoolmates

For more information AND TO READ MICHAEL’S HAE STORY , please contact Nicole Harrington at harringtonnicole1@gmail.com

 

Jeans Day for HAE Day

May 16, 2013 – Memphis, TN

Employees and staff of Christ Community Health Services wear jeans (donation) to honor HAE Global Awareness Day

For more information, please contact Pamela Liggins at pamela.liggins@christchs.org

 

Brenda’s Awareness Day for HAE

May 16, 2013 – St. Louis, MO

Raising HAE awareness among members of the Trinity Methodist Church

For more information, please contact Brenda Minnick at Brenda@haea.org

 

Soma Intimates

May 16, 2013 – Albuquerque,NM

Donating 10% of every purchase to HAEA and raising HAE awareness in the local community.

For more information, please contact Victoria Charlton at vcharlton@comcast.net

 

HAE Awareness for Healthcare Professionals

May 16, 2013 – Greater Cincinnati, OH area

Information provided to offices, ERs, fire stations, etc.

For more information, please contact Missy Mallory at mkmallory3@gmail.com

 

Michigan House Resolution 146 (2013)

May 16, 2013 – Michigan State Legislature

Sponsored by State Rep .Jim Townsend. Thanks to Alex Fike for facilitatingthis Resolution – alex.fike@gmail.com

http://www.legislature.mi.gov/documents/2013-2014/resolutionadopted/House/pdf/2013-HAR-0146.pdf

 

Walk a Block for HAE

May 11, 2013 – Pleasant St. YMCA, Attleboro, MA

A fundraiser to support HAE research – sponsor each 1/10th of a mile with a donation of your choice.

For more information, please contact Janet Long at janetlong@haea.org or go to https://www.firstgiving.com/USHAEA/janet-long

 

Interview with local ABC Affiliate for HAE Awareness

May 6, 2013 – St. Joseph, MO (also to be aired on May16)

Media event to provide education and to raise awareness

For more information, please contact Chuck and Bobbi Sturges at roadcshd@yahoo.com

 

Donation of sales received from Pink Papaya

May 4-May 6, 2013 – www.pinkpapaya.com/MSDANIELLE/

Danielle’s donation will go to support financial assistance for HAE patients diagnosis

For more information, please contact Danielle at pinkpapayasunshine@gmail.com

 

Annual Disease/Health Awareness Day – South Lake Chamber Center

April 23, 2013 – Clermont, FL

Health fair to educate community physicians and nurses.

For more information, please contact Troyce Venturella at nursetroyce@yahoo.com

 

Cincinnati Reds Opening Day Parade

April 1, 2013 – Cincinnati, OH

Increasing awareness through hae day :-) banners on 2 parade fire trucks.

For more information, please contact Missy or Mike Mallory at mike.mallory3@gmail.com

 

One Year Ashley Crow Memorial HAE Awareness Event to Benefit the HAEA

March 23, 2013 – Heritage Park , Cullman, AL

An awareness event to support HAE research and remember Ashley, who passed away from HAE –balloons will be released with HAEA web site information and then it will be posted where they were found around the country.

For more information, please contact Johna Licht at thesitter8@hotmail.com

 

Yorkville High School Katwalk for Kelsie

Jan. 18, 2013 – Yorkville, IL

A fundraiser to support HAE research and support a Yorkville High School student who has HAE.

For more info, contact LRichmond@y115.org

hae day :-) 2012 Awareness and Fundraiser Events

Organize an event on hae day :-) to create awareness or fundraise

Michigan House Resolution HCR 268

Passed May 16, 2012

Alex.fike@gmail.com

 

Cincinnati Reds Opening Day Parade truck

April 5, 2012 – Cincinnati, OH

Banners announced HAE Day :-) to the parade crowd.

For more info, contact mike.mallory3@gmail.com

 

Nursing Students and Medical Staff Education and Awareness

April 13, 2012 – Honolulu, HI.

Putting a face to a rare disease for more accurate and quicker diagnosis and treatment.

For more info, contact donna-davis@haea.org and Chaitanya Nichols

 

Swell Card Tournament

May 5, 2012 – Winston-Salem, NC

Prizes and just lots of fun for a low, low admission price.

For more info, contact thisisrocky@myway.com

 

Bowl 4 HAE

May 6, 2012 – Kearney, NE

Family bowling fun!

For more info, contact cjfuqua@hotmail.com

 

HAE Walk-A-Thon

May 12, 2012

Waterfront Park in Clermont, FL

Laps around the park, information booth, small donation.

For more info, contact nursetroyce@yahoo.com

 

Swell Treats & Bake Sale

May 16, 2012 – Lockhart, TX Walmart

HAE awareness and delicious baked goods.

For more info, contact gandniss@yahoo.com

 

Scoreboard message – Angels baseball game

May 16, 2012 7:05pm

“Congratulations 1st National HAE Day :-) “

Thank you, Wendy!

 

Lyndon Brooke Stidham Memorial Walk for HAE

May 16, 2012 – Heritage Park – Cullman, AL

Relay event, prizes, small registration fee.

For more info, contact hillaryfaye05@yahoo.com

 

HAE Team Hawaii in the 32nd Annual Tinman Triathlon

July 29, 2012 – Honolulu, HI

Swim-Bike-Run to raise funds for HAE research.

For more info, contact donna-davis@haea.org

 

Wine and Dinner for HAE

May 16, 2012 – Amerigo’s Restaurant in the West End, Nashville, TN

For reservations, please call Ali Gensert – 615-298-2986

Also see our other resources about hae day :-)

Taking Part  |  Holding an Event  |  Fundraising  |  Events to Inspire  |  Took Kit  |  Shop

Still have hae day :-) questions?

Please call your HAEA Patient Advocate or email haeday@haea.org

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